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iem-family · The Inborn Errors of Metabolism Family Support List(IEM) is for discussions and support of the families with kids or adults hav
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Liver transplantation for MMA-children?   Message List  
Reply | Forward Message #22 of 104 |
Re: Liver transplantation for MMA-children?

Yes, I've heard of families that have opted for this procedure. We have
asked Dr. Koch in California to come and speak at the upcoming Metabolic
Conference on March 18, 2000 in Taunton, Massachusetts. He has had some
experience with liver transplants and hopefully he will be speaking to MMA
families on this subject.
Kathy Stagni
Organic Acidemia Association
Sun Aug 22, 1999 12:49 pm

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LeeKatMN@xxx.xxx
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Forward 		Message #22 of 104 |
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Has anyone heard about liver transplantation for MMA (methylmalonic acidemia) children as a form of healing? Who has experiences with liver transplantation?... 		OGdeBuhr@xxx.xxx
Send Email 		Aug 15, 1999
7:30 pm

Would recommend strongly AGAINST considering liver transplant unless there are some unusual circumstances; althought the tranplant would be potentially...
Paul Benke
pbenke@xxxx.xxx.xxxxx...
Send Email 		Aug 16, 1999
7:44 pm

HOOORAYYY, Dr. Paul!!!!!...
Susan.L.Rump@xxxxxx.x...
Susan.L.Rump@xxxxxx.x...
Send Email 		Aug 16, 1999
11:08 pm

Your letter made me think of 2 questions. 1. Does nephritis have to do with mito disorders? 2. Does acidosis cause bladder and/or kidney infections? Linda S. ...
Linda
joelinda@xxxxxxxx.xxxx
Send Email 		Jun 17, 1999
6:57 am

Has any heard of growth hormones in MMA ? Jennifer Edwards...
pddlft@xxxxx.xxxxxxxx...
pddlft@xxxxx.xxxxxxxx...
Send Email 		Aug 18, 1999
9:43 pm

Linda, As a 5-y-o, I myself had a mysterious glomerulonephrosis that required ACTH to save me. My daughter, now almost 15, has a rare vitamin B12 IEM. Others...
Susan.L.Rump@xxxxxx.x...
Susan.L.Rump@xxxxxx.x...
Send Email 		Aug 18, 1999
11:30 pm

Message text written by INTERNET:iem-family@onelist.com ... acidemia) children as a form of healing? Who has experiences with liver transplantation?< Yes, I...
conrad cota
CCota@xxxxxxxxxx.xxxx
Send Email 		Aug 20, 1999
6:12 pm

Yes, I've heard of families that have opted for this procedure. We have asked Dr. Koch in California to come and speak at the upcoming Metabolic Conference on...
LeeKatMN@xxx.xxx
Send Email 		Aug 22, 1999
12:49 pm

This is the first I've heard of a Metabolic Conference, (per Kathy Stagni regarding the March 18th conference in Taunton Massachusetts) Will there be much...
WSHeyer@xxx.xxx
Send Email 		Aug 23, 1999
8:53 pm
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