iem-family : Message: Re: Liver transplantation for MMA-children?

iem-family · The Inborn Errors of Metabolism Family Support List(IEM) is for discussions and support of the families with kids or adults hav

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Liver transplantation for MMA-children?

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Message #14 of 104 |

Re: Liver transplantation for MMA-children?

HOOORAYYY, Dr. Paul!!!!!

Thu Jan 1, 1970 3:59 am

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Susan.L.Rump@xxxxxx.xxxxxxxxxxxxxxxxx)

Susan.L.Rump@xxxxxx.xxxxxxxxxxxxxxxxx

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Message #14 of 104 |

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Has anyone heard about liver transplantation for MMA (methylmalonic acidemia) children as a form of healing? Who has experiences with liver transplantation?...	OGdeBuhr@xxx.xxx	Aug 15, 1999 7:30 pm
Would recommend strongly AGAINST considering liver transplant unless there are some unusual circumstances; althought the tranplant would be potentially...	Paul Benke pbenke@xxxx.xxx.xxxxx...	Aug 16, 1999 7:44 pm
HOOORAYYY, Dr. Paul!!!!!...	Susan.L.Rump@xxxxxx.x... Susan.L.Rump@xxxxxx.x...	Aug 16, 1999 11:08 pm
Your letter made me think of 2 questions. 1. Does nephritis have to do with mito disorders? 2. Does acidosis cause bladder and/or kidney infections? Linda S. ...	Linda joelinda@xxxxxxxx.xxxx	Jun 17, 1999 6:57 am
Has any heard of growth hormones in MMA ? Jennifer Edwards...	pddlft@xxxxx.xxxxxxxx... pddlft@xxxxx.xxxxxxxx...	Aug 18, 1999 9:43 pm
Linda, As a 5-y-o, I myself had a mysterious glomerulonephrosis that required ACTH to save me. My daughter, now almost 15, has a rare vitamin B12 IEM. Others...	Susan.L.Rump@xxxxxx.x... Susan.L.Rump@xxxxxx.x...	Aug 18, 1999 11:30 pm
Message text written by INTERNET:iem-family@onelist.com ... acidemia) children as a form of healing? Who has experiences with liver transplantation?< Yes, I...	conrad cota CCota@xxxxxxxxxx.xxxx	Aug 20, 1999 6:12 pm
Yes, I've heard of families that have opted for this procedure. We have asked Dr. Koch in California to come and speak at the upcoming Metabolic Conference on...	LeeKatMN@xxx.xxx	Aug 22, 1999 12:49 pm
This is the first I've heard of a Metabolic Conference, (per Kathy Stagni regarding the March 18th conference in Taunton Massachusetts) Will there be much...	WSHeyer@xxx.xxx	Aug 23, 1999 8:53 pm

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