Thank you, Dr. Friedrich. I'm curious because of a directory that Dr. Harvey Levy of Mass. General/Boston Children's gave me a few years back to help parents of kids with ultra-rare B12 iems who contact me to find expert care in their area.
Good to know you have a well-developed system for older-person follow-up. Even with thorough pediatric care, decent adult follow-up is hard to find in many places. I appreciate your answering my question.
Have a good summer.
Susan