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iem-family · The Inborn Errors of Metabolism Family Support List(IEM) is for discussions and support of the families with kids or adults hav
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The Inborn Errors of Metabolism Family Support List(IEM) is for discussions and support of the families with kids or adults having IEM.
Those who have these problems are also welcome to participate. Discussions can be about technical information, medications, sources of support, daily problems or anything effecting the family and patientslife. Professionals in the field are welcome to join the list, participate and contribute.
http://just4u.com/iem/
http://oaanews.org/
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Marinesco-Sjogren Syndrome website
A new website is available to provide support to families affected by Marinesco-Sjogren Syndrome (MSS) (ataxia, cataracts, very small stature, and cognitive
Posted - Wed Jan 24, 2001 11:52 am
 yinger@...
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Web page
Hey you guys, Cady's web page is updated, go check it out! Http://wvnvm.wvnet.edu:80/~ncb00582. Leslie
Posted - Tue Oct 3, 2000 2:17 pm
 ncb00582@...
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Re: [iem-family] 21 y/o with PKU
Posted - Sun Jul 2, 2000 11:35 am
 susan.l.rump@...
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Re: [iem-family] 21 y/o with PKU
You're thinking of Children's Hospital next door. We treat adults who "outgrow" CHOP's Metabolism Department at the Hospital of the University of Pennsylvania
Posted - Sun Jul 2, 2000 2:59 am
 Christopher Friedrich...
cfriedri@...
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Re: [iem-family] 21 y/o with PKU
... Hello - are you aware we have a clinic for adults with PKU in the Medicine Department at the Hospital of the University of Pennsylvania? ... Dear Dr
Posted - Sun Jul 2, 2000 12:44 am
 susan.l.rump@...
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Related Link: http://just4u.com/iem/
Post message: iem-family@yahoogroups.com
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List owner: iem-family-owner@yahoogroups.com
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