i have already posted about myself earlier i received my ICD in 2007. I had

shocks on three successive days in july 2008



sudDenly in Feb 2009 i had a mild stroke and was hospitalised Thanks to timely

treatment I have recovered fully. There was a lot of hesitation to administEr

clot burster (TPA) as it causes bleeding If there was internal bleeding MRI to

locat exact spot was ruled out. HOWEVER TPA WAS ADMINISTERED AND i HD NO

COMPLICATION EXEPT GUM BLEEDING DUE TO WHICH tpa WAS STOPPED. iS THERE ANY LINK

BETWEEN THERAPY AND STROKE ?



SHUNMUGAM

Hi John,



I am sorry to hear that you feel so alone with your condition because of where

you live. If there is anything we can help you with, please do not hesitate to

contact us (01789 450787)- we offer a 24hour helpline and are always keen to

offer advice, support and information or even lending ear.



Have you tried contacting your nearest ICD patient group? I recall giving you

the contact information for the Somerset ICD group lead by two Arrhythmia

Nurses, have you considered joining them at their next meeting? This would allow

you to meet with ICD patients and discuss and problems, concerns or ideas you

may have.



If I can be of any assistance in helping establish contact with a patient group,

I would be more than happy to do so. If you would like to discuss this in

privicy, my email address is development@... or you can call 01789 450

787.



Bye for now,



Ben (Arrhythmia Alliance)





--- In icdsupport@yahoogroups.com, John wrote:

>

> i was sorry to read you been have a pit of trouble but please also to see

> you are over it i am so happy to hear from others with icd because of where

> i  live you feel like you are the only one. yes i am told as you must have

> that  strong magnet field are no good when you have icd so MRI and CAT scans

> are out i  will look up, soom papers i have to see if their is a answer to

> you last part of  your e-mail for bye be happy and keep flying the kites . .

> .  john

>

Hi Shunmugam,



Thank you for sharing your experience with us all.

I am sorry to hear that you suffered a stroke earlier this year - I trust you

have made a full recovery and are now fighting fit.



I am a little unclear of what you mean by the 'link between therapy and stoke'.

Are you referring to your ICD therapy and possible connections with the risk of

stroke?



How has everything been with your ICD device? Have you experienced any further

episodes of V.Tach since the events in October 2007?



Bye for now,

Ben (Arrhythmia Alliance)



--- In icdsupport@yahoogroups.com, Shunmugam wrote:

>

> i have already posted about myself earlier i received my ICD in 2007. I had

shocks on three successive days in july 2008

>

> sudDenly in Feb 2009 i had a mild stroke and was hospitalised Thanks to timely

treatment I have recovered fully. There was a lot of hesitation to administEr

clot burster (TPA) as it causes bleeding If there was internal bleeding MRI to

locat exact spot was ruled out. HOWEVER TPA WAS ADMINISTERED AND i HD NO

COMPLICATION EXEPT GUM BLEEDING DUE TO WHICH tpa WAS STOPPED. iS THERE ANY LINK

BETWEEN THERAPY AND STROKE ?

>

> SHUNMUGAM

>

Hi ben

nice to hear from you

I had shocks on three days in july last year and stroke in  feb this year is it

possible shocks might have dislodged clot which might have triggered a stroke ?



> Hi Shunmugam,

>

> Thank you for sharing your experience with us all.

> I am sorry to hear that you suffered a stroke earlier this year - I trust you

have made a full recovery and are now fighting fit.

>

> I am a little unclear of what you mean by the 'link between therapy and

stoke'. Are you referring to your ICD therapy and possible connections with the

risk of stroke?

>

> How has everything been with your ICD device? Have you experienced any further

episodes of V.Tach since the events in October 2007?

>

> Bye for now,

> Ben (Arrhythmia Alliance)

>

> --- In icdsupport@yahoogroups.com, Shunmugam wrote:

> >

> > i have already posted about myself earlier i received my ICD in 2007. I had

shocks on three successive days in july 2008

> >

> > sudDenly in Feb 2009 i had a mild stroke and was hospitalised Thanks to

timely treatment I have recovered fully. There was a lot of hesitation to

administEr clot burster (TPA) as it causes bleeding If there was internal

bleeding MRI to locat exact spot was ruled out. HOWEVER TPA WAS ADMINISTERED AND

i HD NO COMPLICATION EXEPT GUM BLEEDING DUE TO WHICH tpa WAS STOPPED. iS THERE

ANY LINK BETWEEN THERAPY AND STROKE ?

> >

> > SHUNMUGAM

> >

>

Hi Shunmugam,



I'm afraid I am unaware of a link between ICD therapy and the cause of stroke

and considering the time interval between the two, it is unlikely that your

stroke would have been as a result of the ICD therapy you received earlier in

the year.



However, can I suggest you discuss this with your Arrhythmia Nurse/Implant

centre at your next check up? As we are not medically trained, I don't want to

rule the connection out.



It might be that the shocks you received had dislodged an undiagnosed blood

clot, however a stroke would have been likely to occur shortly after.



I hope this helps.



Kind Regards,



Ben



--- In icdsupport@yahoogroups.com, Shunmugam wrote:

>

> Hi ben

> nice to hear from you

> I had shocks on three days in july last year and stroke in  feb this year is

it possible shocks might have dislodged clot which might have triggered a stroke

?

>

> > Hi Shunmugam,

> >

> > Thank you for sharing your experience with us all.

> > I am sorry to hear that you suffered a stroke earlier this year - I trust

you have made a full recovery and are now fighting fit.

> >

> > I am a little unclear of what you mean by the 'link between therapy and

stoke'. Are you referring to your ICD therapy and possible connections with the

risk of stroke?

> >

> > How has everything been with your ICD device? Have you experienced any

further episodes of V.Tach since the events in October 2007?

> >

> > Bye for now,

> > Ben (Arrhythmia Alliance)

> >

> > --- In icdsupport@yahoogroups.com, Shunmugam wrote:

> > >

> > > i have already posted about myself earlier i received my ICD in 2007. I

had shocks on three successive days in july 2008

> > >

> > > sudDenly in Feb 2009 i had a mild stroke and was hospitalised Thanks to

timely treatment I have recovered fully. There was a lot of hesitation to

administEr clot burster (TPA) as it causes bleeding If there was internal

bleeding MRI to locat exact spot was ruled out. HOWEVER TPA WAS ADMINISTERED AND

i HD NO COMPLICATION EXEPT GUM BLEEDING DUE TO WHICH tpa WAS STOPPED. iS THERE

ANY LINK BETWEEN THERAPY AND STROKE ?

> > >

> > > SHUNMUGAM

> > >

> >

>

hi ben

thanks for your e-mail there are no patient groups where i live and yes

there are some in somerset but i live on dartmoor and as you know each time i

icd go off that's two years i cannot drive was once if you had a bid shock

then  you could not drive but the dvla or government have said that if any

part go `s  off you lose two years. want i have trouble with is what i was

told at what i  can do but i have file your e-mail and will get back to you

thank you  again.



john

----- Original Message -----

From: Joh

To: icdsupport@yahoogroups.com

Sent: Thursday, July 02, 2009 5:01 PM

Subject: [icdsupport] Re: ICD and stroke

hi ben
thanks for your e-mail there are no patient groups where i live and yes
there are some in somerset but i live on dartmoor and as you know each time i
icd go off that's two years i cannot drive was once if you had a bid shock
then you could not drive but the dvla or government have said that if any
part go `s off you lose two years. want i have trouble with is what i was
told at what i can do but i have file your e-mail and will get back to you
thank you again.

john

Hi shunmugam,

I had a conversation with you when you first posted on this site.I am very

pleased  to hear with timely intervention you have made a full recovery from

your stroke.Welcome back,it is important to understand health issues.I had the

clot buster(Thrombolytics) drug shortly after my MI in 2005.As I recalled this

was done in the ambulance on the way to the emergency department.I understand

that it should not be administered a second time since it may be less effective.

I was made to believe that TPA , a different "clot buster" can be administered

more than once to clear the blood clot.



The standard treatment after an MI following stent insertion I believe is taking

75 mg of Aspirin/Clopidogrel daily to prevent blood clot forming around the

stents and also to prevent future heart attack,stroke and thrombosis in the

veins of the legs.



MRI scan can be used with people if the medical team are convinced of the

benefit to the individual,the device can be switch off and reprogramme after the

examination.In your case your medical team did

not think fit to use the MRI,as they have alternative and safer way in helping

you.

Kind regards

Sam.