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ICD and stroke   Message List  
Reply | Forward Message #116 of 128 |
Re: ICD and stroke

Hi John,
I saw your first posting and sorry for the delay in responding. Firstly I am pleased that you have been responding to others on line and a good way to keep in touch and learn about new approaches.I gather from your descriptions that you view life differently since your therapy (shock), similarly young people with various heart rhythm problems,especially a hereditary condition called "Brugada Syndrome" benefit from the protection of an ICD.
I do understand the inconvenience cause by loosing your driving license following therapy, especially after the first six months is up.I run a support group and not all members are able to attend all the time,I keep them inform by sending a newsletter. It may be the support group that Ben has suggested to you do a similar thing.Lastly have you inquired from the hospital who carried out your implant?
I am happy to mail you a copy of our newsletter and you will find my contact details on the AA website.Please stay in touch and it is very good to hear from you..
Sam
Mk ICD Support Group
----- Original Message -----
From: Joh
Sent: Thursday, July 02, 2009 5:01 PM
Subject: [icdsupport] Re: ICD and stroke

hi ben
thanks for your e-mail there are no patient groups where i live and yes
there are some in somerset but i live on dartmoor and as you know each time i
icd go off that's two years i cannot drive was once if you had a bid shock
then you could not drive but the dvla or government have said that if any
part go `s off you lose two years. want i have trouble with is what i was
told at what i can do but i have file your e-mail and will get back to you
thank you again.

john



Thu Jul 2, 2009 8:57 pm

sam.shunmoogum
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Message #116 of 128 |
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i have already posted about myself earlier i received my ICD in 2007. I had shocks on three successive days in july 2008 sudDenly in Feb 2009 i had a mild...
Shunmugam
shnmgm_k
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Jun 30, 2009
7:53 pm

i was sorry to read you been have a pit of trouble but please also to see you are over it i am so happy to hear from others with icd because of where i live...
John
jfaulknerlloyd
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Jul 1, 2009
2:21 pm

Hi John, I am sorry to hear that you feel so alone with your condition because of where you live. If there is anything we can help you with, please do not...
Ben
benfryaa
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Jul 2, 2009
3:18 pm

Hi Shunmugam, Thank you for sharing your experience with us all. I am sorry to hear that you suffered a stroke earlier this year - I trust you have made a full...
Ben
benfryaa
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Jul 2, 2009
3:18 pm

Hi ben nice to hear from you I had shocks on three days in july last year and stroke in feb this year is it possible shocks might have dislodged clot which...
Shunmugam
shnmgm_k
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Jul 16, 2009
7:39 pm

Hi Shunmugam, I'm afraid I am unaware of a link between ICD therapy and the cause of stroke and considering the time interval between the two, it is unlikely...
Ben
benfryaa
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Jul 17, 2009
9:29 pm

hi ben thanks for your e-mail there are no patient groups where i live and yes there are some in somerset but i live on dartmoor and as you know each time i ...
John
jfaulknerlloyd
Offline Send Email
Jul 2, 2009
6:56 pm

Hi John, I saw your first posting and sorry for the delay in responding. Firstly I am pleased that you have been responding to others on line and a good way to...
Sam
sam.shunmoogum
Offline Send Email
Jul 3, 2009
9:27 am

Hi shunmugam, I had a conversation with you when you first posted on this site.I am very pleased to hear with timely intervention you have made a full...
Sam
sam.shunmoogum
Offline Send Email
Jul 3, 2009
9:55 am
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