Hi John,
I am sorry to hear that you feel so alone with your condition because of where
you live. If there is anything we can help you with, please do not hesitate to
contact us (01789 450787)- we offer a 24hour helpline and are always keen to
offer advice, support and information or even lending ear.
Have you tried contacting your nearest ICD patient group? I recall giving you
the contact information for the Somerset ICD group lead by two Arrhythmia
Nurses, have you considered joining them at their next meeting? This would allow
you to meet with ICD patients and discuss and problems, concerns or ideas you
may have.
If I can be of any assistance in helping establish contact with a patient group,
I would be more than happy to do so. If you would like to discuss this in
privicy, my email address is development@... or you can call 01789 450
787.
Bye for now,
Ben (Arrhythmia Alliance)
--- In icdsupport@yahoogroups.com, John wrote:
>
> i was sorry to read you been have a pit of trouble but please also to see
> you are over it i am so happy to hear from others with icd because of where
> i live you feel like you are the only one. yes i am told as you must have
> that strong magnet field are no good when you have icd so MRI and CAT scans
> are out i will look up, soom papers i have to see if their is a answer to
> you last part of your e-mail for bye be happy and keep flying the kites . .
> . john
>