Hi Sue,
My name is Ben Fry and on behalf of Arrhythmia Alliance I would like to welcome
you to the ICD message board.
I am so pleased that you received prompt, accurate treatment following your
cardiac arrest and that you have joined this message board.
It's not uncommon for the site of the implant to feel bruised and sore for a
while after the operation; some of our members have reported it to take as long
as six weeks to fully heal.
Here at Arrhythmia Alliance we have a wide range of medical literature regarding
ICDs ranging from general 'Patient Information' to 'Exercising with an ICD' and
'Remote Monitoring'. If you would like a selection of these sending to you I
would be more than happy to do this.
Following on from what Sam has mentioned, there are a number of ICD Patient
Information groups across the UK. If you would like some more information about
these or if I can help put you in contact with your nearest group, I would be
more than happy to do so. My email address is development@...
How have you felt following your operation? Is there anything you are uncertain
of or do you have any concerns we can help you with?
Thank you for taking the time to share your experience with us.
Kindest Regards,
Ben
--- In icdsupport@yahoogroups.com, Sam wrote:
>
> Hi Sue,
> Welcome and thank you for sharing your experience with the group.It does take
time to get us to the device both physically and psychologically. Find out from
the AA website, if there is a support group that you can join,which is a very
source of support and will aid your progress.
>
http://www.guardian.co.uk/lifeandstyle/besttreatments/having-a-defibrillator-fit\
ted
> There is a good article on this site.
> Best wishes
> Sam.
> ----- Original Message -----
> From: Su
> To: icdsupport@yahoogroups.com
> Sent: Friday, March 20, 2009 3:58 PM
> Subject: [icdsupport] Newly fitted ICD
>
>
> Dear all
> Its so nice to find this group, I had my ICD fitted in February 2009 so it
is still fairly new and very strange, the pain has almost gone from the implant
area now, but mentally I think its going to take a while to get my head round
the situation!!!
>
> I have had Cardiomyopathy for the last twelve years and have been very lucky
because apart from having to take a truck load of tablets it hasn't really
affected my life, until Friday 13th Feb (of all days) I had a cardiac arrest,
was promptly taken to A&E where I had another one so was swiftly moved to the
Coronary Care Unit where I had yet another one but this time fortuanately I was
hooked up to all sorts of monitors so the doctors were able to tell exactly what
was going on.
>
> Anyway to cut a long story short a few days later I had the ICD fitted and
am now trying hard to get back to normal, but its really reassuring from various
messages that I have read that this can take quite a while and I am not alone in
having these feelings!!!
> Any comments from others would be most appreciated
> Regards
> Sue
>