iSPAN – International Sarcoma Patient Advocate Network
Many Foundations - One Unified Voice

Mission Statement - March 2008

iSPAN is comprised of international individuals and organizations that desire to work together to improve communication, share information and address legislative and regulatory matters affecting sarcoma patients, medical professionals, and researchers. iSPAN members complement and benefit each other through shared communication and networking. In return, iSPAN serves as a common voice for sarcoma advocacy utilizing our strengths and diversity.


This is a private moderated list, limited to key leaders of groups or foundations advocating collaboratively on sarcoma issues.

We use this forum to keep ourselves aware, educated and mobilized by sharing legislative alerts, research & patient resources. We also work together in task force committees on mutual goals and strategies, which will maximize our efforts & benefit us all.

Not Allowed: solicitation & fundraising for member's own private foundations.

Available to all members on this site:

Directory of Sarcoma Advocate Organizations & Foundations
Task force committees files
Chats for task force committee work
Sarcoma & legislative resource list & links
Calendar for collaborative events
Polls for group decision making

*** How to remove yourself this group's mailing list ***

From this home page...

1. Click on the SMALL blue letters EDIT MEMBERSHIP (located above the red name bar.)

2. Scroll to the VERY BOTTOM, and on the FAR RIGHT GREY BOX - click on LEAVE THIS GROUP.

3. It will ask you to confirm - click on the blue LEAVE THIS GROUP.