Hi my son has hydrocephalus. He was diognosed Nov 6th.2003,Since that time hes had a shunt placemant, On Dec 12th 2003. Feb 29nth it failed and he went...
Hey everyone, This is mainly to the teenagers in the group: I'm 21 and was initially shunted when I was 5 wks. and 2 days old. My hydro is due to my...
Hi, My name is Kristen and I was first began getting sick with hydro when I was 3. I had my first shunt placed when I was 5. Since then, 5 revisions and 4...
I had my cathader replaced in July of 2000 because the tubing had worn away. I can still feel the hole in the tract of the cathader. ~Emilie~ ... From:...
Hi, I was just trying to get some kind of idea how many people with hydrocephelus and shunts have dealt with short-term memory problems. I have had a pretty...
Hi, I was just trying to get some kind of idea how many people with hydrocephelus and shunts have dealt with short-term memory problems. I have had a pretty...
Hi Kris u are NOT the only one to deal with this issue I myself have not severe but significant memory issues short term. I have no idea how to deal with it in...
Hello, I am a new member of the group and I am very pleased to be here. I am scheduled for the installation (for lack of better word) of the programmable shunt...
My son had a grade III IVH after being born 8 weeks early, and had a VP shunt inserted at 5 weeks old. He is now 18 months old and progressing very well, in...
Hi, My son (now 18months/born 2 months prem) has hydrocephalus, following a grade IV IVH. We just had our first trip to the hospital for a suspected problem...
Hi, my name is Heather. My 2yr old son has a vp shunt due to a large arachnoid cyst. From previous mri's & ct scans his body is slow to process the fluid....
hi, i have an arachnoid cyst and a vp shunt--for a while i had a shunt in my cyst and another one in my ventricles. but now there is only one in my frontal ...
yes, shunts can overdrain--any neurosurgeon that says they can't is wrong. mine has overdrained a few times. also, ask if he can get a shunt tap to make sure...
Hi Sue my name is Mel and i have 3 vp shunts and have had them since the age of 6months old and i have had 13 revisions till i was a year old. Not to scare u...
Hi Sue my daughter had a vp shunt put in at months and has had 3 revisions since, the first 2 she was 5 and 6 and the last one was just 6 months ago and she...
Mel, My name Heather and my 2yr. old son has a vp shunt because of an arachnoid cyst. Chance also has seizures and is currently taking med. for it. what do I...
Hi Heather forgive me but i'm not quite sure what u are asking me? Do u mean when he has them? If u don't mind me asking what kinds of seizures does he have?...
Hi Heather My child was 6mon when she got her vp shunt prone to seizures but has only had one since she will be 10 in Aug...I work also with SH kids in school...
I have to admit that when I read that your son's NS said that shunts could not overdrain, that raised a red flag immediately. I, personally, would seek another...
Hi Debbie, do u mean some of the kids that have seizures just stare in space, if this is true I would like to talk to you about it my daughter did 2 of these...
I have dealt with hydrocephalus since I was 3 years old (1972) I was 5 before the docs figured out what was wrong. By that time, I could literally hear the...
I developed adult onset hydro 18 months ago at age 43. Have had a programmable shunt put in and would love to talk with others with similar experience about...
Hi, I am new to your group and deperately need advice that no one around here seems to be able to help me with. I volunteer with a medical missions group that...
Hi my name is Darlene.I have a fifteen yr old son who whas just diagnosed with hydrocephalus due to a mass blocking the flow tube in the brain. He was put in...
Hi Melissa Chancelor has cluster seizure and somethimes he just stares into space and screams. Since he has been on his medicine I hardly every see them...
It is so nice to hear that others are having short-term memory issues also. Like I said in my origional post, I have had them since 1989 when I lost 18 months...
One great place to contact is the Hydrocephalus Association, in San Francisco, CA. Here is their contact info: Hydrocephalus Association, www.hydroassoc.org...
Kris, I hope posting your letter made you feel a little better, but frankly I doubt it. I have had many of the same experiences & can identify with your ...
Paul, Thank you so much for your response. Posting my letter did help a little, until this morning when I got up and realized that I am dealing with the same ...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
