My son was diagnosed with congenital hydrocephalus at 4 months. After several surgeries over the course of a year the proper shunt was placed. He is now 2.5...
Thanks for the invite.My younger sister was diagnosed with hydrocephalus at 2 months old and has had a shunt for ten years now. I was hoping to find a pen...
Hi everyone, I just decided a few minutes ago to join a "few" more hydro clubs so here I am(LOL). My name is Erin and I am 19 years old and am in my second...
welcome! I thought i was reading about my son!! It brought back memories. Not exactly like your birth but pretty close. He was also a preemie, 30 weeks...
Junehew@...
Apr 5, 2002 4:10 pm
34
Hi everyone, I was just wondering if anyone was up for a chat as I am ready to step into the chat room...? Do y'all ever schedule a chat time? Just ...
Hi, Thanks for the warm welcome! LOL. You're not the only one to say that my story and/or signature reminds someone of what they went/have been through(or in...
Hello everybody, I just found this group. I have a one year old son with hydrocephalus. Needless to say in the last year I have found out as much as I could...
Hi! I am a new member. My soon to be 8 year old son has an FG diagnosis, which is a syndrome that has multiple anomalies. Lately some new wigns have been...
... I am a "lurking" member of the group....-I have a 19 month old daughter with Holodiencephaly, (rare brain malformation where the mid-brain is not...
No one has actually mentioned anything specific since he will go in this coming week for the MRI to rule out or confirm. From my understanding, it needs to be...
My name's Jeff. I was born with Hydrocephalus in 1974, and this past month had my 13th shunt surgery. I had struggled with many problems over the years,...
Welcome Jeff Feel free to chat with me I as a parent of a 7yr old with Hydrocephalus always have been open to what I have been thru..I didnt have a support...
Hi everyone, you may feel free to chat with me too. I am a parent of a child that's 12 with hydrocephalus and cerebral palsy....
Junehew@...
May 3, 2002 3:19 am
45
Hey All, I just wanted to let you all know that I've started my own hydrocephalus group. It's open to anyone. There's not many members and not a whole lot of...
I am so delighted by this new NS! For those of you in Southern California and Orange County, his name is Bradley Noblett. He is an adult NS who recently...
My husband and I are in process to adopt. We have just been given the tentative referral of a 6 month old who was prenatally diagnosed with hydrocephalus. We...
Hi Denise I see your in calif. I dont know where but have you tried this: www.hydroassoc.org also my friend is the executive director of the Hydrocephalus...
Hi as you all can see from my subject line... I will be 24 next month and I was diagnosed with Hydrocephalus when I was 23. I had a the surgery in November...
Hi Sally welcome srochman2000 <srochman2000@...> wrote: Hi as you all can see from my subject line... I will be 24 next month and I was diagnosed with...
Hi Sally, and welcome. I was diagnosed at age 30 after 12 yrs of headaches. Finally after 4 surgeries they got it right. They told me it was from a problem at...
In a message dated 5/15/2002 10:12:39 PM Eastern Daylight Time, ... hi Sally, welcome to the list. i'd just like to say that, while hydrocephalus is not a good...
Well thank you... Do you guys have any weekly chats or do you know of a group outside the internet something similiar to AA that people like us can join? I...
I dont like the word "horrible dyfuction" either and my daughter is leading the best possible "normal" life we can give her we tell her to do your best and be...
<P> Hey Sally <P>I live in Calif and we have our own support that meets every 3rd month to talk I also belong to the Hydrocephalus Association in...
Hi, can you please take me off the mailing list thank you __________________________________________________ Do You Yahoo!? LAUNCH - Your Yahoo! Music...
