Hi Hydrocephalus, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you...
I am having a problem, and need some advice from other adults with shunts. I was diagnosed with Hydro at four weeks, and have had many shunt revisions, my...
How many of you out there have both conditions or have kin with both conditions? All I get as far as feedback on my condition is a shake of the head and "I...
i've had the same shunt since 1987 so it's probably a delta. it's hurt before but only when i was a kid. I hit my shunt a couple weeks ago at work(which i've...
On the 18th Iam having a codman hakmin programmable put in on my right side and wanted to know what anyone thought of them.Right now I have 2 pudentz-shulte vp...
I wish I could say something but wanted to let you know that we'll be thinking of you. I am going on 2 years with my own shunt and I have always just wanted...
A couple of weeks ago i started having unbareable headaches. all my ct scans and xrays came out normal (which alot of have the same issue) so my doctor though...
I wish I could tell you everyone is different. I was put on lyrica 75 mg twice a day, now that want me to take neurotin for headaches because it is cheaper...
I wanted to know if a ct showed enlargement of the posterior end of the ventricles or the back of the head if there would still be headaches in the front in...
Has anyone had shunt malfuction symptoms and a ct show some enlargement then the symptoms go away? I had been having headaches back in December and a CT showed...
i'been having headaches off and on for a couple of weeks. I had a ct done and it showed mild enlargment of ventricles.I have pain meds for the headaches but...
holiday greetings from Sweden Merja Tims mum Tim born 1992 with congenitalhydrocephalus and Oesophageal Atresia Have a look at www.hydrocefalus.com Would be...
Hello if there is anyone reading this :-) My name is Andrea, and I have an almost 8month old daughter who suffers from Hydrocephalus. She was diagnosed in...
I have learned the unfortunate truth of the discriminatory nature of some stores in my city. Once again (yes it has happened before) some malicious store clerk...
My beautiful son has acquired Hydro. He was born with heart defects that were not detected until my wife and I took him to the emergency room at 3am on the...
Hello, My name is Harriet, and I am trying to find people with Hydrocephalus who were born with it, and might be able to keep in touch with me. As a lot of you...
does anyone know how to look for an obstetrician who has experience with hydrocephalic patients? or is it something i have to just ask around about?...
Hi, I have acquired hydro from a brain abscess that I had in July 2000. After the first craniotomy with aspiration I had a open ventriculostomy, then the...
Hi All. My name is Dani and i have hydrocephalus too. I have had this since birth. I was premature. I just had my 2nd total shunt replacement in May. I had...
Hi my name is Jennifer and I have congenital hydrocephalus and I was diagnosed with it at birth. I am now 23 years old and I am feeling a little different...
Sorry guys but i decided for once I need to vent .... I've had such a hard 3 weeks with really bad headaches - where I've had periods at work where I've had a...
Please come visit me in my myspace.com/monicad1974 I have my hydro story and info I can pick up along the way plus a video of a doctor explaining hydro and...
I have a 17 mo son who is shunted and just had a craniectomy in Feb and has been doing great. His NS is concerned about his head size. It is growing at a...
I really do feel for you, while I don't have hydro myself (on here because my daughter does) I have neuro muscular issues and have had 2 disc fusions with one...
Never give up How many blessings first appear as troubles? How many opportunities come in the form of problems? If you give up when trouble first arrives,...
Hi and Welcome Jennifer, Though am sorry that we are both here. I am a 40 y o, big kid who ended up having a shunt put in Last May after having radiation for 2...
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