I am having a problem, and need some advice from other adults with
shunts.  I was diagnosed with Hydro at four weeks, and have had many
shunt revisions, my most recent one being in 1995.  My question is
this.  Have any of you ever experienced sharp, stabbing pains going
through your head, and if so, was this ever attributed to the
positioning of your shunt or the shunt touching a block of nerves?
You see, I am not having hydro headaches, so I'm relatively sure the
shunt if functioning normally (it doesn't drain as well when I'm
lying flat at night so often I wake up with morning headaches, but
that's all), however, recently I have begun experiencing
intermittent, acute stabbing pains that begin on the right side of
the back of the head (where my shunt is positioned) and radiate
around to the left.  These have been growing in frequency and
intensity over the past several weeks.  I am considering arranging a
visit with my NS, but his practice is in St. Louis MO (over an hour
and a half from where I live), and my insurance isn't that good, so
the diagnostic testing is expensive.  I want to make sure there is
warranted cause for alarm before I go sounding the buzzer and jumping
into a bunch of expensive tests (my deductible is huge).  Are these
pains common to people with shunts and something I should expect and
learn to live with, or are they a cause for alarm and a sign that
something will have to be corrected.  I am planning a cross country
trip this summer, and hesitate to jump into surgery as I know I will
not be well enough to make the trip by my birthday in July.  Can
anyone give me some feedback on this and advise me as to whether or
not I should call my doc?  My symptoms always take a while to
manifest themselves, so tests may not prove conclusive at this
point.  I would welcome any advice you could give me.  My e mail
address is jw774@....  My name's Jeff, in case no one remembers
me.  I'm afraid I haven't posted for a while.

Hmmm....NO I have never had the drainage from the ear thing...and
whenever I bend over or get up quickly I feel the pressure and i have
to take a sec to get my witts about me, but my NS said thats
normal....
Is it possible that they can speed up getting you that referral?
I would want to clear things up you know? I hate having the "unknown"
Would you maybe want to see another NS and start off new?  I hope
they can find whats going on with you......YOu sound like you are in
pain.,  The headaches that Im having are on the right side of my head
where the shunt is....but im having faith in god and my NS...He says
that normal...Im taking him at his word....
sally




--- In hydrocephalus@yahoogroups.com, Sweetrse7@... wrote:
>
> Sally-
>
> I have had monitoring of my shunt, but have not  had a scan in some
time.
> The ns that I was seeing in SF is no longer my  dr. because he was
a specialist,
> and I now have seen one in my city, and did  have a CT scan that he
informed
> me looked the same as it did in 2003.  I do  have a problem with my
memory as
> of late, and am not sure as to when I had that  last scan done.  I
am thinking
> it was a few years ago though.  I am  currently awaiting approval
for a
> referral for a scan.  I have had  headaches that seem to radiate
from the center of
> my head out to my  eyeballs.  It sort of feels as if I have suction
cups
> pulling on  them.  The pain in the shunt area does worry me.  As
well as the fact
> that I am having mood swings which aren't the norm for me.  I have
also
> noticed that when I bend down or lower my head I get intense
pressure  pain.  I am
> not sure about the reason for that or if it is even related to  my
problems.
> You do think that i am not being paranoid though ?  Have  you ever
had a
> problem with drainage from your ears that is clear ?  I also  have
very horrible
> ear problems.  I have constant pain, which cannot be  explained
because I have
> seen a specialist for it and he cannot figure out why I  am having
the pain
> because I my ears appear to be perfect !  He has even  done testing
to confirm.
>
> Jill
>
>
> In a message dated 2/11/2009 10:43:48 A.M. Pacific Standard Time,
> srochman2000@... writes:
>
>
>
>
> Jill,
>
> Yes. I just went on friday for a follow up and told him that I  was
> having some headaches and my shunt area was sore.....I just had
> surgery on Dec 30 so he said that was the healing process for me.
He
> said all people are different but that I could have this soreness
for
> a few months because the head is a sensitive area. Now in your
case,
> if you were okay from 2003 up until now, well Id be a bit
> concerened.  Why hasnt your NS done anything? he should at least
> give you a cat scan to  see if the shunt is okay in the head. Take
it
> from me, if a doctor wont  help you go to someone else. I waited
way
> too long in case. I lived 8  years with a limp that I was
embarrased
> about... Now I dont have any kids  like in your case though.....So
> what does your doctor say is the reason  for your pain now? Are you
> having bad headaches as well?
>
> Sally
> I  will pray for you.
>
> --- In _hydrocephalus@hydrocephaluhyd_
(mailto:hydrocephalus@yahoogroups.com)
> ,  Sweetrse7@,  Sw
> >
> > Sally-
> >
> > Thank you  for the information. I am a little confused though,
> your ns told
> >  you that pain in the shunt area was the normal healing process ?
> Mine was
> > replaced in 2003, why do you think I would be having the pain
now  ?
> >
> > Thank you-
> >
> > Jill
> >
> >
> >  In a message dated 2/11/2009 7:19:00 A.M. Pacific Standard Time,
> >  srochman2000@  srochm
> >
> >
> >
> >
> >  Jill.
> >
> > Long story short with me. Im sally. 30 years old. First  shunted
> > under emergency status when I was 23.A doctor did a cat scan  and
> saw
> > that my whole head with the exception of about an inch  was
filled
> > with spinal fluid. so I then went in and had emergency  shunt
> surgery
> > due to hydrocephalus. OK 6 monhs after the surgery  my walk
started
> > to get bad again. I went to numerous doctors and they  all
wouldnt
> > touch me. MY own doctor told me not to mess with  something that
> > wasnt broken
> > ok...so years went by and finally  this past year I was
encouraged
> by
> > my husband and my family to  see another NS bec my old one
retired.
> I
> > ended up at Edison, NJ's  Neo clinic. One of the best in NJ. So
My
> > doctor (my savior in my  eyes) did tests etc and said he would
> > perform a shunt revision. After  the shunt ogram (thats when they
> take
> > a needle and draw out fluid  from the shunt to see if the shunt
is
> > working) he said it was working  but VERY VERY slowly and up to
me
> if
> > i wanted to go forward with  the surgery. I had the surgery on
Dec.
> > 30, 2008. Im happy to say that  I am on my way to recovery. MY
walk
> > is almost 100 percent better and  with the help of PT Im doing
> great,
> > I still have pain or soreness  back at the shunt and small
> headaches
> > but my NS said he is not  concerned bec that is just me
> healing....as
> > long as my  "headaches" arent all over my head and are on the
side
> of
> > where  the shunt was put in. He told me that it could take me
> months
> > to  stop feeling the soreness over there. Im so happy that I
found
> > this  doctor. HE was the only NS in my area that would actually
> take
> > me  seriously and do the surgery. Good luck to you and I am
praying
> > for  you and everyone in this group....
> >
> > Sally
> >
> > ---  In _hydrocephalus@ ---  In _hydr
> (mailto:_hydrocephalus@hydrocephaluhyd_
> (mailto:hydrocephalus@yahoogroups.com) )
> > , Sweetrse7@, Sw
> > >
> > > Hi-
> > >
> >  > My name is Jill and I was born with Dandy Walker Syndrome
> >  Hydrocephalus, and
> > > luckily mine was caught when I was barely a  week old. I do
have
> a
> > slightly
> > > enlarged head, but  other than that i don't seem to have any
> other
> > physical
> >  > abnormalities aside from misaligned big toes. I have had over
a
> >  dozen
> > > surgeries though. The first shunt that was placed in  infancy
was
> > a VP. Following
> > > that I have had revisions,  and tube replacements due to
> blockage.
> > Until
> > >  recently my shunt appeared to be working. In 2002 I had my
> second
> >  child and then
> > > shortly after had complications which were  thought to have
been
> > due to a
> > > Pituitary tumor. I later  had surgery to remove that, and lost
> > peripheral vision
> > >  in my left eye. After having this surgery my pediatric NS
> > reviewed my  scans
> > > and was appalled upon realizing that was not the problem.  My
> > shunt had
> > > malfunctioned, and he called a specialist  in SF to review my
> file,
> > an perform
> > > surgery to fix  it. During this whole time I was having
terrible
> > head pain, and
> > > was informed by this surgeon that I would be flown to SF to
have
> > the emergency
> > > surgery if my symptoms worsened before my  scheduled date.
> Luckily
> > that
> > > didn't have to happen,  and I was transported to SF in July of
> 2003
> > for surgery.
> >  > My VP shunt, which was found to have disinegrated was replaced
> >  with a
> > > Programmable one. Since having that surgery though I have  been
> > dealing with pain
> > > periodically. It has gotten  worse in the years since my
surgery
> > though, and I
> > > fear  that it may have malfunctioned as I have read that the
> > expectancy of  a
> > > shunt is only 3-4 years and I am going on 6 with mine. Aside
> from
> > that I was
> > > originally wanting to let you know  that I have had two
children
> > with normal
> > > pregnancy, and  deliveries who do not have any signs of Hydro.
> > >
> > > Best  Wishes-
> > >
> > > Jill
> > >
> > > 33 yrs  old
> > >
> > > Ps.... I do have poor eyesight which I am told  was due to hydro
> > >
> > >
> > > In a message dated  2/9/2009 3:05:36 P.M. Pacific Standard
Time,
> > > monica_thornton2003  monica_
> > >
> > >
> > >
> > >
> > >  personally i have hydrocephalus. personally i have
> hydrocephalus.<WB
> > was about 6
> > > months old...  they were going to put a shunt in,,, but the
next
> > day i didnt
> > > need it... i am now going on 33yrs old... i have never had any
> > issues but
> > > vertigo, headaches, and of course the big  head... i am
greatful
> to
> > be how i am...
> > > and my  fourth child was also born with mild hydro... though
they
> > say its not
> > > hereditary.. hereditary..<WBR>my FYI-my f
> >  > --- On Tue, 1/13/09, pjdkmc17 <pjdkmc17@...> wrote:
> >  >
> > >
> > > From: pjdkmc17  <pjdkmc17@...>
> > > Subject: [hydrocephalus] Porencephaly  and hydrocephalus
> > > To: hydrocephalus@ To: hy
> > > Date:  Tuesday, January 13, 2009, 1:24 PM
> > >
> > >
> > >
> > > How many of you out there have both conditions or have kin
with
> > both
> > > conditions? All I get as far as feedback on my  condition is a
> > shake of
> > > the head and "I don`t know why  you survived or are able to
> function
> > > normally." Peter
> > >
> > >
> > >
> > >
> > >
> >  >
> > >
> > >
> > >
> > >
> > >  ************ ************<WBR>**A Good Credit Score is 700  o
> > just 2 easy
> > > steps!
> > >
>
(__http://pr.atwola.http://pr.http://prhttp://pr.atwolhttp://pr.atwola
_
>
(http://pr.atwola.http//pr.atwhttp://pr.atwolahttp://pr.atwolahttp_)

> >
>
(_http://pr.atwola.http://pr.atwhttp://pr.atwolahttp://pr.atwolahttp_
>
(http://pr.atwola.com/promoclk/100000075x1218550342x1201216770/aol?) )

> >
redir=__http://www.freecredhttp://www.frehttp://www.freehttp://www._
> (http://www.freecredhttp//wwhttp://www.freehttp://www.free_)
> > (_http://www.freecredhttp://wwhttp://www.freehttp://www.fre_
> (http://www.freecreditreport.com/pm/default.aspx?sc=668072) )
> > 26hmpgID=62% 26hmpgI
> > > bemailfooterNO62)
> >  >
> >
> >
> >
> >
> >
> >  ************  ************<WBR>**Nothing says I love you like
flower
> near you
> > now. (_http://yellowpages.http://yellowpa_
> (http://yellowpages.aol.com/search?)
> query=florist&<WBR>ncid=emlcnt<WBR>ncid=
> >
>
>
>
>
>
> **************Nothing says I love you like flowers! Find a florist
near you
> now. (http://yellowpages.aol.com/search?
query=florist&ncid=emlcntusyelp00000001)
>

Jill,

Yes.  I just went on friday for a follow up and told him that I was
having some headaches and my shunt area was sore.....I just had
surgery on Dec 30 so he said that was the healing process for me.  He
said all people are different but that I could have this soreness for
a few months because the head is a sensitive area. Now in your case,
if you were okay from 2003 up until now, well Id be a bit
concerened.  Why hasnt your NS done anything?  he should at least
give you a cat scan to see if the shunt is okay in the head.  Take it
from me, if a doctor wont help you go to someone else. I waited way
too long in case. I lived 8 years with a limp that I was embarrased
about...  Now I dont have any kids like in your case though.....So
what does your doctor say is the reason for your pain now?  Are you
having bad headaches as well?

Sally
I will pray for you.

--- In hydrocephalus@yahoogroups.com, Sweetrse7@... wrote:
>
> Sally-
>
> Thank you for the information.  I am a little  confused though,
your ns told
> you that pain in the shunt area was the normal  healing process ?
Mine was
> replaced in 2003, why do you think I would be  having the pain now ?
>
> Thank you-
>
> Jill
>
>
> In a message dated 2/11/2009 7:19:00 A.M. Pacific Standard Time,
> srochman2000@... writes:
>
>
>
>
> Jill.
>
> Long story short with me. Im sally. 30 years old. First  shunted
> under emergency status when I was 23.A doctor did a cat scan and
saw
> that my whole head with the exception of about an inch was filled
> with spinal fluid. so I then went in and had emergency shunt
surgery
> due to hydrocephalus. OK 6 monhs after the surgery my walk started
> to  get bad again. I went to numerous doctors and they all wouldnt
> touch me.  MY own doctor told me not to mess with something that
> wasnt  broken
> ok...so years went by and finally this past year I was encouraged
by
> my husband and my family to see another NS bec my old one retired.
I
> ended up at Edison, NJ's Neo clinic. One of the best in NJ. So My
> doctor (my savior in my eyes) did tests etc and said he would
> perform  a shunt revision. After the shunt ogram (thats when they
take
> a needle and  draw out fluid from the shunt to see if the shunt is
> working) he said it  was working but VERY VERY slowly and up to me
if
> i wanted to go forward  with the surgery. I had the surgery on Dec.
> 30, 2008. Im happy to say that  I am on my way to recovery. MY walk
> is almost 100 percent better and with  the help of PT Im doing
great,
> I still have pain or soreness back at the  shunt and small
headaches
> but my NS said he is not concerned bec that is  just me
healing....as
> long as my "headaches" arent all over my head and  are on the side
of
> where the shunt was put in. He told me that it could  take me
months
> to stop feeling the soreness over there. Im so happy that I  found
> this doctor. HE was the only NS in my area that would actually
take
> me seriously and do the surgery. Good luck to you and I am praying
> for  you and everyone in this group....
>
> Sally
>
> --- In _hydrocephalus@hydrocephaluhyd_
(mailto:hydrocephalus@yahoogroups.com)
> ,  Sweetrse7@,  Sw
> >
> > Hi-
> >
> > My name is Jill  and I was born with Dandy Walker Syndrome
> Hydrocephalus, and
> >  luckily mine was caught when I was barely a week old. I do have
a
> slightly
> > enlarged head, but other than that i don't seem to have any
other
> physical
> > abnormalities aside from misaligned big toes. I have had  over a
> dozen
> > surgeries though. The first shunt that was placed in  infancy was
> a VP. Following
> > that I have had revisions, and tube  replacements due to
blockage.
> Until
> > recently my shunt appeared to  be working. In 2002 I had my
second
> child and then
> > shortly after  had complications which were thought to have been
> due to a
> >  Pituitary tumor. I later had surgery to remove that, and lost
> peripheral  vision
> > in my left eye. After having this surgery my pediatric NS
> reviewed my scans
> > and was appalled upon realizing that was not  the problem. My
> shunt had
> > malfunctioned, and he called a  specialist in SF to review my
file,
> an perform
> > surgery to fix it.  During this whole time I was having terrible
> head pain, and
> > was  informed by this surgeon that I would be flown to SF to have
> the emergency
> > surgery if my symptoms worsened before my scheduled date.
Luckily
> that
> > didn't have to happen, and I was transported to SF in July  of
2003
> for surgery.
> > My VP shunt, which was found to have  disinegrated was replaced
> with a
> > Programmable one. Since having  that surgery though I have been
> dealing with pain
> > periodically.  It has gotten worse in the years since my surgery
> though, and I
> >  fear that it may have malfunctioned as I have read that the
> expectancy of  a
> > shunt is only 3-4 years and I am going on 6 with mine. Aside
from
> that I was
> > originally wanting to let you know that I have had two  children
> with normal
> > pregnancy, and deliveries who do not have  any signs of Hydro.
> >
> > Best Wishes-
> >
> >  Jill
> >
> > 33 yrs old
> >
> > Ps.... I do have poor  eyesight which I am told was due to hydro
> >
> >
> > In a  message dated 2/9/2009 3:05:36 P.M. Pacific Standard Time,
> >  monica_thornton2003  monica_
> >
> >
> >
> >
> > personally i have hydrocephalus. personally i have
hydrocephalus.<WB
> was about 6
> > months old... they were going to put a shunt in,,,  but the next
> day i didnt
> > need it... i am now going on 33yrs  old... i have never had any
> issues but
> > vertigo, headaches, and of  course the big head... i am greatful
to
> be how i am...
> > and my  fourth child was also born with mild hydro... though they
> say its not
> > hereditary.. hereditary..<WBR>my FYI-my f
> > --- On Tue,  1/13/09, pjdkmc17 <pjdkmc17@...> wrote:
> >
> >
> >  From: pjdkmc17 <pjdkmc17@...>
> > Subject: [hydrocephalus]  Porencephaly and hydrocephalus
> > To: hydrocephalus@ To: hy
> >  Date: Tuesday, January 13, 2009, 1:24 PM
> >
> >
> >
> >  How many of you out there have both conditions or have kin with
> both
> > conditions? All I get as far as feedback on my condition is a
> shake of
> > the head and "I don`t know why you survived or are able  to
function
> > normally." Peter
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >  ************  ************<WBR>**A Good Credit Score is 700 o
> just  2 easy
> > steps!
> >
(_http://pr.atwola.http://pr.atwhttp://pr.atwolahttp://pr.atwolahttp_
>
(http://pr.atwola.com/promoclk/100000075x1218550342x1201216770/aol?)
> redir=_http://www.freecredhttp://wwhttp://www.freehttp://www.free_
> (http://www.freecreditreport.com/pm/default.aspx?sc=668072)
> 26hmpgID=62%26hmpgID
> >  bemailfooterNO62)
> >
>
>
>
>
>
> **************Nothing says I love you like flowers! Find a florist
near you
> now. (http://yellowpages.aol.com/search?
query=florist&ncid=emlcntusyelp00000001)
>

Happy birthday peter!   You truly are a miracle walking - and from my little
miracle (kaila) to you - may you have many more!  Michelle

--- Original Message ---
From:"PETER MCNALLY" <pjdkmc17@...>
Sent:Wed 2/11/09  11:23 am
To:hydrocephalus@yahoogroups.com
Subj:Re: [hydrocephalus] Re: Porencephaly and hydrocephalus

Thank you for all your replies. I don`t know what kind of procedure they would
have performed on me when I was an infant because they did not know what to do.
I survived a very rocky childhood and have a very large head. I have lived a
pretty normal life with little side effects. They are a lazy left eye, periodic
powerful headaches which last for about a minute or so. Today is my birthday, I
turned 65.              Peter

--- On Wed, 2/11/09, srochman2000 <srochman2000@...> wrote:

From: srochman2000 <srochman2000@...>
Subject: [hydrocephalus] Re: Porencephaly and hydrocephalus
To: hydrocephalus@yahoogroups.com
Date: Wednesday, February 11, 2009, 10:18 AM












             Jill.



Long story short with me.  Im sally. 30 years old. First shunted

under emergency status when I was 23.A doctor did a cat scan and saw

that my whole head with the exception of about an inch was filled

with spinal fluid.  so I then went in and had emergency shunt surgery

due to hydrocephalus.  OK 6 monhs after the surgery my walk started

to get bad again. I went to numerous doctors and they all wouldnt

touch me.  MY own doctor told me not to mess with something that

wasnt broken

ok...so years went by and finally this past year I was encouraged by

my husband and my family to see another NS bec my old one retired. I

ended up at Edison, NJ's Neo clinic. One of the best in NJ.  So My

doctor (my savior in my eyes)  did tests etc and said he would

perform a shunt revision. After the shunt ogram (thats when they take

a needle and draw out fluid from the shunt to see if the shunt is

working) he said it was working but VERY VERY slowly and up to me if

i wanted to go forward with the surgery.  I had the surgery on Dec.

30, 2008.  Im happy to say that I am on my way to recovery. MY walk

is almost 100 percent better and with the help of PT Im doing great,

I still have pain or soreness back at the shunt and small headaches

but my NS said he is not concerned bec that is just me healing....as

long as my "headaches" arent all over my head and are on the side of

where the shunt was put in. He told me that it could take me months

to stop feeling the soreness over there. Im so happy that I found

this doctor.  HE was the only NS in my area that would actually take

me seriously and do the surgery.  Good luck to you and I am praying

for you and everyone in this group....



Sally



--- In hydrocephalus@ yahoogroups. com, Sweetrse7@.. . wrote:

>

> Hi-

>

> My name is Jill and I was born with Dandy Walker  Syndrome

Hydrocephalus, and

> luckily mine was caught when I was barely a week  old.  I do have a

slightly

> enlarged head, but other than that i don't seem  to have any other

physical

> abnormalities aside from misaligned big toes.  I  have had over a

dozen

> surgeries though.  The first shunt that was placed in  infancy was

a VP.  Following

> that I have h

Jill.

Long story short with me.  Im sally. 30 years old. First shunted
under emergency status when I was 23.A doctor did a cat scan and saw
that my whole head with the exception of about an inch was filled
with spinal fluid.  so I then went in and had emergency shunt surgery
due to hydrocephalus.  OK 6 monhs after the surgery my walk started
to get bad again. I went to numerous doctors and they all wouldnt
touch me.  MY own doctor told me not to mess with something that
wasnt broken
ok...so years went by and finally this past year I was encouraged by
my husband and my family to see another NS bec my old one retired. I
ended up at Edison, NJ's Neo clinic. One of the best in NJ.  So My
doctor (my savior in my eyes)  did tests etc and said he would
perform a shunt revision. After the shunt ogram (thats when they take
a needle and draw out fluid from the shunt to see if the shunt is
working) he said it was working but VERY VERY slowly and up to me if
i wanted to go forward with the surgery.  I had the surgery on Dec.
30, 2008.  Im happy to say that I am on my way to recovery. MY walk
is almost 100 percent better and with the help of PT Im doing great,
I still have pain or soreness back at the shunt and small headaches
but my NS said he is not concerned bec that is just me healing....as
long as my "headaches" arent all over my head and are on the side of
where the shunt was put in. He told me that it could take me months
to stop feeling the soreness over there. Im so happy that I found
this doctor.  HE was the only NS in my area that would actually take
me seriously and do the surgery.  Good luck to you and I am praying
for you and everyone in this group....

Sally

--- In hydrocephalus@yahoogroups.com, Sweetrse7@... wrote:
>
> Hi-
>
> My name is Jill and I was born with Dandy Walker  Syndrome
Hydrocephalus, and
> luckily mine was caught when I was barely a week  old.  I do have a
slightly
> enlarged head, but other than that i don't seem  to have any other
physical
> abnormalities aside from misaligned big toes.  I  have had over a
dozen
> surgeries though.  The first shunt that was placed in  infancy was
a VP.  Following
> that I have had revisions, and tube  replacements due to blockage.
Until
> recently my shunt appeared to be  working.  In 2002 I had my second
child and then
> shortly after had  complications which were thought to have been
due to a
> Pituitary tumor.  I  later had surgery to remove that, and lost
peripheral vision
> in my left  eye.  After having this surgery my pediatric NS
reviewed my scans
> and was  appalled upon realizing that was not the problem.  My
shunt had
> malfunctioned, and he called a specialist in SF to review my file,
an perform
> surgery to fix it.  During this whole time I was having terrible
head pain,  and
> was informed by this surgeon that I would be flown to SF to have
the  emergency
> surgery if my symptoms worsened before my scheduled date.   Luckily
that
> didn't have to happen, and I was transported to SF in July of 2003
for surgery.
> My VP shunt, which was found to have disinegrated was  replaced
with a
> Programmable one.  Since having that surgery though I have  been
dealing with pain
> periodically.  It has gotten worse in the years  since my surgery
though, and I
> fear that it may have malfunctioned as I have  read that the
expectancy of a
> shunt is only 3-4 years and I am going on 6 with  mine.  Aside from
that I was
> originally wanting to let you know that I have  had two children
with normal
> pregnancy, and deliveries who do not have any signs  of Hydro.
>
> Best Wishes-
>
> Jill
>
> 33 yrs old
>
> Ps.... I do have poor eyesight which I am told was  due to hydro
>
>
> In a message dated 2/9/2009 3:05:36 P.M. Pacific Standard Time,
> monica_thornton2003@... writes:
>
>
>
>
> personally i have hydrocephalus.per my parents  found out when i
was about 6
> months old... they were going to put a  shunt in,,, but the next
day i didnt
> need it... i am now going on 33yrs  old... i have never had any
issues but
> vertigo, headaches, and of course  the big head... i am greatful to
be how i am...
> and my fourth child was  also born with mild hydro... though they
say its not
>  hereditary..my FYI-my father also has it.
> --- On Tue,  1/13/09, pjdkmc17 <pjdkmc17@...> wrote:
>
>
> From:  pjdkmc17 <pjdkmc17@...>
> Subject: [hydrocephalus]  Porencephaly and hydrocephalus
> To:  hydrocephalus@To:  To:
> Date: Tuesday, January 13,  2009, 1:24 PM
>
>
>
> How many of you out there have both conditions or have kin with
both
> conditions? All I get as far as feedback on my condition is a
shake of
> the head and "I don`t know why you survived or are able to  function
> normally." Peter
>
>
>
>
>
>
>
>
>
>
> **************A Good Credit Score is 700 or Above. See yours in
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>

If it was me. I would be talking to my doctor about it.
You probably just bruised it really bad but I would get it checked out just in
case.
Me, I have only had mine for about a year and 8 months. I thought if it messes
up or something they only last for 2 years I thought I read somewhere??
Mine has hurt before but not as bad as yours. The doctors put mine on my right
side and I tend to lay on that side to sleep so for me I think I am also
assuming that this is why mine hurts sometimes.
 
Melissa Granada/WI 
My dogs aren't my whole life, but my life wouldn't be whole without them.

________________________________
Tim Landry wrote:


i've had the same shunt since 1987 so it's probably a delta. it's hurt
before but only when i was a kid. I hit my shunt a couple weeks ago at
work(which i've done before)..and within the last week or so it's
started to bother me usually only at work but last night it was
actually hurting and it's still bothering me this morning. I don't have
the symptons of shunt failure or infection. My head does hurt but only right
next to the shunt. Does anyone have a idea of what's going on or
do you need more information?

i've had the same shunt since 1987 so it's probably a delta. it's hurt
before but only when i was a kid. I hit my shunt a couple weeks ago at
work(which i've done before)..and within the last week or so it's
started to bother me usually only at work but last night it was
actually hurting and it's still bothering me this morning. I don't have
the symptons of shunt failure or infection. My head does hurt but only
right next to the shunt. Does anyone have a idea of what's going on or
do you need more information?

I wish I could say something but wanted to let you know that we'll be thinking
of you.
I am going on 2 years with my own shunt and I have always just wanted it out of
me.
HUGS,
 
Melissa Granada/WI 
My dogs aren't my whole life, but my life wouldn't be whole without them.




________________________________
From: tom

On the 18th Iam having a codman hakmin programmable put in on my right
side and wanted to know what anyone thought of them.Right now I have 2
pudentz-shulte vp shunts.and the last revision I had was 17 years ago.

On the 18th Iam having a codman hakmin programmable put in on my right
side and wanted to know what anyone thought of them.Right now I have 2
pudentz-shulte vp shunts.and the last revision I had was 17 years ago.

I wish I could tell you
everyone is different.
I was put on lyrica 75 mg twice a day, now that want me to take neurotin for
headaches because it is cheaper but the lyrica works for me but is 125.00 a
month, then 50 after the first, you could try that and see if it would work.
just an idea
 
Melissa Granada/WI 
My dogs aren't my whole life, but my life wouldn't be whole without them.


 "Kevin H." <> wrote:
>
> A couple of weeks ago i started having unbareable headaches. all my ct
> scans and xrays came out normal (which alot of have the same issue) so
> my doctor though it might be the Amitriptylne is to low, so he doubled
> the dose to 50mg. Well that worked well for about 3wks and now i am
> back where i started, headaches like someone is putting a brick on my
> brain. then my doctor decided to try a Medrol Pak to see what that
> does. not only did it not work, the meds taste god aweful! can anyone
> relate or tell me what the heck is going on with me sometime before
> they drive me insane. (ha to late!)
> --Kevin