I wish I could tell you
everyone is different.
I was put on lyrica 75 mg twice a day, now that want me to take neurotin for
headaches because it is cheaper but the lyrica works for me but is 125.00 a
month, then 50 after the first, you could try that and see if it would work.
just an idea
 
Melissa Granada/WI 
My dogs aren't my whole life, but my life wouldn't be whole without them.


 "Kevin H." <> wrote:
>
> A couple of weeks ago i started having unbareable headaches. all my ct
> scans and xrays came out normal (which alot of have the same issue) so
> my doctor though it might be the Amitriptylne is to low, so he doubled
> the dose to 50mg. Well that worked well for about 3wks and now i am
> back where i started, headaches like someone is putting a brick on my
> brain. then my doctor decided to try a Medrol Pak to see what that
> does. not only did it not work, the meds taste god aweful! can anyone
> relate or tell me what the heck is going on with me sometime before
> they drive me insane. (ha to late!)
> --Kevin

I have a programable shunt and I still get headaches and migraines.
I had a brain tumor, though it disappeared, the only thing that was affected by
it was my walking, writing and talking.
 
Melissa Granada/WI 
My dogs aren't my whole life, but my life wouldn't be whole without them.




i have hydracephalus for 19 years. this year i started expierencing
headasches also. sometimes it has to do with the pressure of your
shunt what ever yours is at so now i have a programmable shunt inserted.

I wanted to know if a ct showed enlargement of the posterior end of
the ventricles or the back of the head if there would still be
headaches in the front in the forehead. The ventricles were not
enlarged in the anterior part or front just midline to posterior.The
headaches now are gone but I still feel pressure.I have an appt. on
Monday to see my neuro.

Has anyone had shunt malfuction symptoms and a ct show some
enlargement then the symptoms go away? I had been having headaches back
in December and a CT showed mild dilation and I had seizures.Since then
the headaches have been mild and  seemed to have stopped.I have an appt.
with my neuro next week but now i'm not having any symptoms.

Erin,
where are u at...what state?  If u are in NJ let me know/  Nobody
would listen to me as well or even help me regarding my hydro after
my first surgery...i went to a wonderful NS and am now well enough to
return to work today....Let me know if u would travel to NJ.  that is
where I am located...
hope u will start feeling better, but my advice is to see another
NS....
Sally
--- In hydrocephalus@yahoogroups.com, Erin Nashed <nashederin@...>
wrote:
>
> HI, my name is Erin and I have had 2 decompression  surgergries, 1-
08, 11-08, and also 3 vp shunt replacemecements this last year, now
My shunt is bad again and my NS will not listen to me, Do you have
any help for me. I am in alot of pain, and haveong seizures,
everyday. Please let me know ,Hope you are haveing a good day, Erin
>
> --- On Thu, 1/15/09, tom parady,jr <tomgpjr@...> wrote:
>
> From: tom parady,jr <tomgpjr@...>
> Subject: Re: [hydrocephalus] Re: headaches
> To: hydrocephalus@yahoogroups.com
> Date: Thursday, January 15, 2009, 7:24 PM
>
>
>
>
>
>
>
>
>
>
> I have two shunts that have been in for 17 and 20 years
>
>
>
> tom parady,jr
>
> --- On Tue, 1/13/09, pjdkmc17 <pjdkmc17@yahoo. com> wrote:
>
>
> From: pjdkmc17 <pjdkmc17@yahoo. com>
> Subject: [hydrocephalus] Re: headaches
> To: hydrocephalus@ yahoogroups. com
> Date: Tuesday, January 13, 2009, 3:02 PM
>
>
>
>
> --- In hydrocephalus@ yahoogroups. com, "tom" <tomgpjr@ > wrote:
> >
> > i'been having headaches off and on for a couple of weeks. I had a
ct
> > done and it showed mild enlargment of ventricles.I have pain meds
for
> > the headaches but they don't seem to work.The pain hasn't reached
an
> > unbearable stage they are more of an annoyance.They also come and
go
> > and show up later.
> > Tom parady,Jr
> >
>
>
> Dear Tom,
> You don`t say anything about a shunt. I don`t have one because
> they were not available when I was born. I also have different
degrees
> of headaches. Some are mild and some feel like my head is in a vice.
> Others are severe but they don`t last very long about a minute or
so.
> Most of the time I don`t have headaches and there is no set pattern
to
> the headaches. I have seen a neurologist but he says I am doing
> amazingly well. I just tolerate mine.
> Peter
>

How many of you out there have both conditions or have kin with both
conditions? All I get as far as feedback on my condition is a shake of
the head and "I don`t know why you survived or are able to function
normally."                Peter

--- In hydrocephalus@yahoogroups.com, "tom" <tomgpjr@...> wrote:
>
> i'been having headaches off and on for a couple of weeks. I had a ct
> done and it showed mild enlargment of ventricles.I have pain meds for
> the headaches but they don't seem to work.The pain hasn't reached an
> unbearable stage they are more of an annoyance.They also come and go
> and show up later.
>                       Tom  parady,Jr
>


Dear Tom,
       You don`t say anything about a shunt. I don`t have one because
they were not available when I was born. I also have different degrees
of headaches. Some are mild and some feel like my head is in a vice.
Others are severe but they don`t last very long about a minute or so.
Most of the time I don`t have headaches and there is no set pattern to
the headaches. I have seen a neurologist but he says I am doing
amazingly well. I just tolerate mine.
       Peter

i'been having headaches off and on for a couple of weeks. I had a ct
done and it showed mild enlargment of ventricles.I have pain meds for
the headaches but they don't seem to work.The pain hasn't reached an
unbearable stage they are more of an annoyance.They also come and go
and show up later.
                       Tom  parady,Jr

holiday greetings from Sweden


Merja
Tims mum
Tim born 1992 with congenitalhydrocephalus and Oesophageal Atresia

Have a look at

www.hydrocefalus.com

Would be glad for a few words in the guestbook

Thanks :-)

holiday greetings from Sweden


Merja
Tims mum
Tim born 1992 with congenitalhydrocephalus and Oesophageal Atresia

Have a look at

www.hydrocefalus.com

Would be glad for a few words in the guestbook

Thanks :-)

have you already had a shunt series, ct scan..? how many ventricles do
you have ? if so if they say your shunt is fine its a pressure
problem. also just because a ct a shunt series and everything looks
normal you can still be having a shunt malfunction i had 2 and had
these problems.


--- In hydrocephalus@yahoogroups.com, "Kevin H." <phillyhoward@...> wrote:
>
> ive had hydro for my entire life. (26yrs)i've never had any headaches
> this intense in my entire life.
>

ive had hydro for my entire life. (26yrs)i've never had any headaches
this intense in my entire life.

i have hydracephalus for 19 years. this year i started expierencing
headasches also. sometimes it has to do with the pressure of your
shunt what ever yours is at so now i have a programmable shunt inserted.





--- In hydrocephalus@yahoogroups.com, "Kevin H." <phillyhoward@...> wrote:
>
> A couple of weeks ago i started having unbareable headaches. all my ct
> scans and xrays came out normal (which alot of have the same issue) so
> my doctor though it might be the Amitriptylne is to low, so he doubled
> the dose to 50mg. Well that worked well for about 3wks and now i am
> back where i started, headaches like someone is putting a brick on my
> brain. then my doctor decided to try a Medrol Pak to see what that
> does. not only did it not work, the meds taste god aweful! can anyone
> relate or tell me what the heck is going on with me sometime before
> they drive me insane. (ha to late!)
> --Kevin
>

A couple of weeks ago i started having unbareable headaches. all my ct
scans and xrays came out normal (which alot of have the same issue) so
my doctor though it might be the Amitriptylne is to low, so he doubled
the dose to 50mg. Well that worked well for about 3wks and now i am
back where i started, headaches like someone is putting a brick on my
brain. then my doctor decided to try a Medrol Pak to see what that
does. not only did it not work, the meds taste god aweful! can anyone
relate or tell me what the heck is going on with me sometime before
they drive me insane. (ha to late!)
--Kevin

----- Original Message -----

From: chris kling

To: hydrocephalus@yahoogroups.com

Sent: Thursday, November 20, 2008 10:47 PM

Subject: [hydrocephalus] Re:OT: My list of Yahoo Groups :)

**************** DO NOT REPLY TO GROUPLY REQUESTS ****************   See snopes report: http://message.snopes.com/showthread.php?p=508572

----- Original Message -----

From: Peter McNally

To: hydrocephalus@yahoogroups.com

Sent: Thursday, November 20, 2008 1:06 PM

Subject: [hydrocephalus] OT: My list of Yahoo Groups :)

Hi,

You can see a list of my groups on Grouply at the link below. Maybe you'll find some you want to join.

Peter

Here's the link:
http://www.grouply.com/register.php?tmg=1870151&vt=23634090





====================
This message was posted by a fellow group member who uses Grouply instead of email to access this group. Grouply blocks additional invitations from being sent to this group by anyone for 30 days. Group owners can permanently block future invitations. For more on how Grouply maintains privacy and protects you, see http://blog.grouply.com/protect/ .

Hello if there is anyone reading this :-)  My name is Andrea, and I have
an almost 8month old daughter who suffers from Hydrocephalus.  She was
diagnosed in the womb then had the Endoscopic Third Ventriculostomy
procedure at 3 days old, was unsuccessful according to her Neurosurgeon,
she then 10 days later had a vp shunt put in, 10 days after the shunt
was put in, it was reprogramed down to a lower setting for more fluid to
flow, as her head was still getting bigger... Since then her shunt has
been working beautifully but in late August she took a GrandMal seizure
and has taken 2 more since. Children's hospital of Pittsburgh diagnosed
her with Epilepsy also now which she takes an anti-convulsant daily
for..  (her 1st 2 seizures lasted over 50 minutes!) Then just days ago
she was diagnosed with having Nystagmus in both eyes..(long story short
i guess..)        So I start looking around on yahoo, and i found this,
not sure if I am actually posting this to a forum/group or what, kinda
confused LOL!  But that is why I am here, looking to learn ars much as I
can about Hydrocephalus, etc. for the sake of my baby daughter :-)   I'm
a very good listener and friend as well if anyone is ever looking for
someone to talk to or share hydro stories with.  Thank you for reading
and for your time.   **Andrea- mother of

=====================
Posted through Grouply, the better way
to access your Yahoo Groups like this one.
http://www.grouply.com/?code=post


TAGS: hydrocephalus,epilepsy,nystagmus,new member

type_D

I don't really have any "advice" to give you but an I
guess "similiar" situation happened to me 5 days after I had my baby
(who had hydro) and I was driving back down to the Children's
hospital she was in after driving back home to get some
necessities,she was awaiting her shunt procedure, but anyhoo, 5
police cars pulled me and my fiance over, (wouldn't even let us pull
up the road, made us stop in the middle of the road which was sort of
a "main" kind of road) ordered us out of the car with our hands up
slowly,patted us down like criminals then finally told us that the
gas station/convenient store that we'd stopped at 5-10min before,
a "narcotics deal" went down in there and they thought we were either
the buyers or sellers! they trashed the inside of our car, dumped out
my purse, rumaged through the trunk, etc etc etc, we kept telling
them we were from out of town lil over an hour away going to
children's hospital of Pgh. up the road, even if we were going to do
some sort of drug deal we know no one in that area, they held up
traffic and us for around a half hour before they decided we had
nohing on us, no apology for anything, and when we rumaged through
all they went through, the 2 packs of smokes we had bought at that
convenient store, not even opened yet, were stolen! they stole our
unopened cigs ontop of it all!! That was a time I considered finding
an attorney to file a suit against the city of pittsburgh (allegheny
county to be more exact for anyone that knows anything about my area)
but I was so insulted,  embarassed, and know exactally how you feel.
People can be cruel, 1st impressions are everything and when someone
thinks something about you its hard to convince them otherwise.
people can really be mean sometimes.
--- In hydrocephalus@yahoogroups.com, "Ugly Me" <ugly@...> wrote:
>
> I have learned the unfortunate truth of the discriminatory nature
of some stores in my city.
> Once again (yes it has happened before) some malicious store clerk
has fasely accused me of shoplifting.
>
> The first time was at a supermarket called Price Choppers (part of
the same chain as Sobey's and Foodland, formerly known as IGA).
> This was back in the summer time... I was walking through the
store, "window" shopping if you will, checking out prices which
fluctuate considerably depending on supply and demand and other
things etc.
> Finding no real deals, I left. Some bitch demanded I come back and
let her rummage through my belongings (I carry a bag or backpack
wherever I go because I don't have a car to leave it in).
> I refused on the grounds that I have the right not to be subject to
unreasonable searches (she targeted me out of the blue), she had no
warrant, and she couldn't state what I allegedly had. There were no
witnesses to this fictitious crime, not even a camera.  I ignored her
and walked on.  Next thing I know, some big goon almost twice my
height chased after me and wrestled me to the ground and tried to
take my personal property from me. I refused and fought him off the
best I could, including taking a bite out of his arm when he stuck it
in my face.
> By that time two security guards grabbed me and draggedme to their
office, bad mouthing me all the way.  They seized my belongings but
confirmed (surprise!) I had no stolen merchandise.
> The cops came and were equally as pissed - at ME!  I feel I tried
to defend myself against an assailant. They defended HIM though, not
me.
>
> But, acknowledging I stole nothing, they let me go - told me I was
banned from the shopping mall.
> No apologies for falsely accusing me or anything.
>
> I never returned. When my father in law came to visit he wanted to
get something at Canadian Tire (for those in another country it's a
large retail chain selling hardware/outdoor/automotive supplies) and
was pissed when I said we had to go to the one across town because I
was banned from that mall. Oh well.  As I said, I never returned.
>
> Fast forward to last week.  I was at another mall. Actually I was
all over the place - shocked at the price of bread currently.  I left
one place, then another, and I come to A&P where I took a look at the
price of bread (same as everywhere) and left.  But when I got on the
bus, I was followed by a cop who said I had stolen some
unspecified "meat" from the supermarket. He didn't listen when I
asked why I wasn't declared innocent until proven guilty as per
Canadian law.  He actually got on the bus and stopped it while this
happened.  Luckily at this point I've learned to keep receipts for
every purchase for this very reason.
> Satisfied that I had no stolen goods, he left the bus and we were
on our way.  No apologies.  This time I wasn't banned from anywhere
though.
>
> I phoned the A&P headquarters the next day and explained what had
happened. This time I did get an apology (and I told the woman on the
phone that she was the only person to do so) and she said she'd
contact the store.
>
> I went back there yesterday -- and calmly, quietly, politely asked
to speak to the manager.  He talked to me and said he got the memo
about me. He said he was going to continue the investigation once he
knew who chased me down - it was indeed a cop, not a mall guard.
>
> HE SAID that there is a protocol they try to follow to prevent
theft and that one way or another, I fit the "look" of a suspect.
> I told him that it is not my fault I am short (5'1") and that I
can't control the fact that I have a "hidden" disability or that I'm
not wealthy enough to wear the latest fashions.
> Was that reason for me to be targetted?  He said it wasn't. I
informed him that the cop confirmed that I had none of his
merchandise and that I did not appreciate being stereotyped in that
way.
> He did apologize and said he'd talk to staff about the incident and
try to repair their public relations with customers. He said I'm
welcome to shop there again.
>
> But am I really?  Now I feel quite vulnerable and know that A&P is
not a safe place to shop because someone discriminates against me
because of my appearance.
> Afterwards my wife informed me about how my eyes seem to "wander"
at times as well. She accused me of not paying attention when I try
to look right at her. I've had to tell her that it is not deliberate.
> I remember being concerned about that once before and asked my
daughter's opthamologist. He said he didn't see anything wrong
although maybe he didn't care as I wasn't his patient.
>
> But all this has me dragged out. I feel targetted, discriminated
against, victimized, and except for my wife, it seems like nobody
gives a darn, nobody will listen to me.
> I don't know how to protect myself against such people. I don't
know how to -- take revenge. I shouldn't say that, I know, but it is
how I feel. It's like some people want to walk all over me because
I "look" different.
>
> I need help. Suggestions. Advice. An advocate. A lawyer. An assault
rifle. Something.
>
> Don't get me wrong, I'm usually peaceful by nature, but these
situations have stirred up so many uncomfortable emotions and I don't
know what to do.
>
> Help, somebody.
>
> Thanks.
>
> -Sean
>

Just wanted to add a note.  I had a headache for 2 years once.  It
never went away.  Then one day I gave blood at church and my
headache went away.  It would return after about a month and I'd
repeat giving blood and it would go away.  Turns out that the first
doctor that put my shunt in, put in an 18 pound pressure valve.  My
neurosurgeon took it out, as he said, "to play with it".  He
replaced it with a nine pound pressure valve and I hardly ever have
a headache now.  It has been 9 years now since it was fixed.

Karen


--- In hydrocephalus@yahoogroups.com, ashley rolon
<baby_spice91711@...> wrote:
>
> i feel like ive been having pressure headaches i feel like theres
too much pressure in my head. ive been tired nauseated i keep
getting ct scans done and my ventricles are slightly enlarged
>
>
>
>
> ________________________________
> From: jaxxmc200 <jaxxmc200@...>
> To: hydrocephalus@yahoogroups.com
> Sent: Saturday, October 11, 2008 9:24:53 AM
> Subject: [hydrocephalus] Re: (unknown)
>
>
> hello again..i just remembered something that may be of use to you
> regarding your headaches.
> the times you get the headaches can give you a good idea whether
your
> shunt is over draining. over draining(low pressure) headaches tend
to
> be in the afternoon (but not always) after physical activity, when
> sitting up or standing up and can be eased by lying down.
> under draining tend to be when you wake up or  during lying down ,
> they tend to gradually become worse(?) my daughter seemed to
improve
> after a period of being upright ie she would awake in the morning
> complaining of headache..as the time eased on it would ease off..!
>
> hope this helps too! any more questions feel free!
>
> jackie :)
> --- In hydrocephalus@ yahoogroups. com, ashley rolon
> <baby_spice91711@ ...> wrote:
> >
> > during the time your daughters shunt was over draining did the
drs
> say that the ct scans and xrays looked fine? how were they able to
> tell what was going on?
> >
> > and i hope everything gets sorted i have had hydro since i was 2
> wks old i had 12 surgries than and i had my surgery at queen of
the
> valley and the shunt was inserted on the outside of my head and it
> fell out than after like 3 -5 surgeries there my shunt even became
> infected i was airlifted to orange childrens hospital and i had my
> shunt put in good there and first revision was first grade after i
> had it put in and i had 3 surgeries in first grade and this year
ive
> already had 2 revisions because my shunt keeps stop working. so
far
> now i have had 3 x rays and ct scans and everything shows up
normal
> and my shunt is draining but im feeling pressure headaches and am
> sleeping all day i get really sleepy they keep asking are you
> pregnant and im not they constantly check but now they are telling
me
> that mayebe i need to get a spine mri to see if something is wrong
> with my ba ck but its like its not my back they dont wanna listen
> >
> >
> >
> > ----- Original Message ----
> > From: jaxxmc200 <jaxxmc200@ ..>
> > To: hydrocephalus@ yahoogroups. com
> > Sent: Tuesday, October 7, 2008 3:32:09 PM
> > Subject: [hydrocephalus] (unknown)
> >
> >
> > Hi Erin, i do not have hydro myself, my daughter does she is 3
yrs
> old
> > and has had several revisions.
> >
> > ***you know your own symptoms, so if you feel how you felt
before
> then
> > i would be concerned.** *
> >
> > i hav had to struggle to get drs to listen to me when i KNEW her
> shunt
> > wasn't working. Maryam had her shunt go a couple of times close
> > together..it took her a little longer to recover-balance was
off..a
> > little clumsy etc, but the difference was noticable immedietly.
> Maryam
> > also had a period of over draining(8monthsish ) we suffered
several
> > blockages over that time due to her ventrical collapsing around
the
> > catheter...then as the pressure built back up it would push the
> brain
> > back and would continue to overdrain for a period. drs wouldnt
do
> > anything about it because they said can be very difficult to
> remedy. :(
> > I hope you get sorted soon.
> > Jackie.
> >
> > --- In hydrocephalus@ yahoogroups. com, Erin Nashed
> <nashederin@ ...>
> > wrote:
> > >
> > > Hi, I am new to this group. I was decompressed( for Chiari
> > Malformation) in 1-08. Then in April I had  a VP shunt put in
for
> hydro-
> > PCT. I had a shunt replacement on Oct. 15th, because it had shut
> down
> > and clogged up. Then 2 weeks later it was bad again. So on
Oct.2nd,
> my
> > NS replaced it again. I am still not feeling well at all. After
the
> > first replacement, I felt a difference immediately. This time is
> awful.
> > Could it be because it is sooooo close together? Or could it be
it
> is
> > not working right again? Any help would be apprecciatted,
please.
> How
> > many shunts have you had replaced? Thanks for all your help.
Good
> day,
> > Erin
> > >
> >
>

----- Original Message -----

From: Ugly Me

To: hydrocephalus@yahoogroups.com

Sent: Sunday, November 02, 2008 9:09 PM

Subject: [hydrocephalus] Stores that discriminate

I have learned the unfortunate truth of the discriminatory nature of some stores in my city.

Once again (yes it has happened before) some malicious store clerk has fasely accused me of shoplifting.

 

The first time was at a supermarket called Price Choppers (part of the same chain as Sobey's and Foodland, formerly known as IGA).

This was back in the summer time... I was walking through the store, "window" shopping if you will, checking out prices which fluctuate considerably depending on supply and demand and other things etc.

Finding no real deals, I left. Some bitch demanded I come back and let her rummage through my belongings (I carry a bag or backpack wherever I go because I don't have a car to leave it in).

I refused on the grounds that I have the right not to be subject to unreasonable searches (she targeted me out of the blue), she had no warrant, and she couldn't state what I allegedly had. There were no witnesses to this fictitious crime, not even a camera.  I ignored her and walked on.  Next thing I know, some big goon almost twice my height chased after me and wrestled me to the ground and tried to take my personal property from me. I refused and fought him off the best I could, including taking a bite out of his arm when he stuck it in my face.

By that time two security guards grabbed me and draggedme to their office, bad mouthing me all the way.  They seized my belongings but confirmed (surprise!) I had no stolen merchandise.

The cops came and were equally as pissed - at ME!  I feel I tried to defend myself against an assailant. They defended HIM though, not me.

 

But, acknowledging I stole nothing, they let me go - told me I was banned from the shopping mall.

No apologies for falsely accusing me or anything.

 

I never returned. When my father in law came to visit he wanted to get something at Canadian Tire (for those in another country it's a large retail chain selling hardware/outdoor/automotive supplies) and was pissed when I said we had to go to the one across town because I was banned from that mall. Oh well.  As I said, I never returned.

 

Fast forward to last week.  I was at another mall. Actually I was all over the place - shocked at the price of bread currently.  I left one place, then another, and I come to A&P where I took a look at the price of bread (same as everywhere) and left.  But when I got on the bus, I was followed by a cop who said I had stolen some unspecified "meat" from the supermarket. He didn't listen when I asked why I wasn't declared innocent until proven guilty as per Canadian law.  He actually got on the bus and stopped it while this happened.  Luckily at this point I've learned to keep receipts for every purchase for this very reason.

Satisfied that I had no stolen goods, he left the bus and we were on our way.  No apologies.  This time I wasn't banned from anywhere though.

 

I phoned the A&P headquarters the next day and explained what had happened. This time I did get an apology (and I told the woman on the phone that she was the only person to do so) and she said she'd contact the store.

 

I went back there yesterday -- and calmly, quietly, politely asked to speak to the manager.  He talked to me and said he got the memo about me. He said he was going to continue the investigation once he knew who chased me down - it was indeed a cop, not a mall guard.

 

HE SAID that there is a protocol they try to follow to prevent theft and that one way or another, I fit the "look" of a suspect.

I told him that it is not my fault I am short (5'1") and that I can't control the fact that I have a "hidden" disability or that I'm not wealthy enough to wear the latest fashions.

Was that reason for me to be targetted?  He said it wasn't. I informed him that the cop confirmed that I had none of his merchandise and that I did not appreciate being stereotyped in that way.

He did apologize and said he'd talk to staff about the incident and try to repair their public relations with customers. He said I'm welcome to shop there again.

 

But am I really?  Now I feel quite vulnerable and know that A&P is not a safe place to shop because someone discriminates against me because of my appearance.

Afterwards my wife informed me about how my eyes seem to "wander" at times as well. She accused me of not paying attention when I try to look right at her. I've had to tell her that it is not deliberate.

I remember being concerned about that once before and asked my daughter's opthamologist. He said he didn't see anything wrong although maybe he didn't care as I wasn't his patient.

 

But all this has me dragged out. I feel targetted, discriminated against, victimized, and except for my wife, it seems like nobody gives a darn, nobody will listen to me.

I don't know how to protect myself against such people. I don't know how to -- take revenge. I shouldn't say that, I know, but it is how I feel. It's like some people want to walk all over me because I "look" different.

 

I need help. Suggestions. Advice. An advocate. A lawyer. An assault rifle. Something.

 

Don't get me wrong, I'm usually peaceful by nature, but these situations have stirred up so many uncomfortable emotions and I don't know what to do.

 

Help, somebody.

 

Thanks.

 

-Sean

 

I did not think that Neurologist had the training to adjust the programmable
shunts I thought only Neurosugerns could do that. Unless your doctor has a
degree in both feilds. Because i know of someone who goes to a doctor like
that. Just wondering if they are starting to train some neurologist on how
to adjust the shunts?

Laura and Ripple
----- Original Message -----
From: "Wes Stillwagon" <wstillwagon1@...>
To: <hydrocephalus@yahoogroups.com>
Sent: Monday, November 03, 2008 1:47 PM
Subject: [hydrocephalus] Re: Shunt


>
> I was advised a year or so ago to get my programmed shunt adjusted by a
> neurologist. It was just pure hell finding a certified neuro surgeon to
> do the adjustment. None in my area would touch it if they didn't install
> the shunt. It was a nightmare. I finally found one in Reading
> Pennsylvania who would do it at the request of my original
> Neuro-surgeon. He examined the ctscan and found the ventricles did not
> indicate a need for an adjustment.
>
> Wes
> =====================
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> to access your Yahoo Groups like this one.
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>
>
>
>
> ------------------------------------
>
> Yahoo! Groups Links
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>
>

I was advised a year or so ago to get my programmed shunt adjusted by a
neurologist. It was just pure hell finding a certified neuro surgeon to
do the adjustment. None in my area would touch it if they didn't install
the shunt. It was a nightmare. I finally found one in Reading
Pennsylvania who would do it at the request of my original
Neuro-surgeon. He examined the ctscan and found the ventricles did not
indicate a need for an adjustment.

Wes
=====================
Posted through Grouply, the better way
to access your Yahoo Groups like this one.
http://www.grouply.com/?code=post