Hi Hydrocephalus, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you...
hi im 19 years old and i have had hydracephalus since i was 2 wks old and whenever i have had pains such as yours or have heard buzzing coming from my shunt or...
I am having a problem, and need some advice from other adults with shunts. I was diagnosed with Hydro at four weeks, and have had many shunt revisions, my...
Dear Jill,     I have one child of my own and three step-children. They are not children any more.     My three step-sons are 47,46 and 44. My son...
I am waiting on my insurance and my primary care to refer me out. Hopefully it is not the same doctor I saw the last time ! He didn't seem to be or want to...
Hmmm....NO I have never had the drainage from the ear thing...and whenever I bend over or get up quickly I feel the pressure and i have to take a sec to get my...
Jill, Yes. I just went on friday for a follow up and told him that I was having some headaches and my shunt area was sore.....I just had surgery on Dec 30 so...
Peter- First off, Happy Birthday ! I am overjoyed to know now that life expectancy is not very short as I was led to believe years ago ! Do you have...
Sally- Thank you for the information. I am a little confused though, your ns told you that pain in the shunt area was the normal healing process ? Mine was...
Happy birthday peter! You truly are a miracle walking - and from my little miracle (kaila) to you - may you have many more! Michelle ... From:"PETER...
Thank you for all your replies. I don`t know what kind of procedure they would have performed on me when I was an infant because they did not know what to do....
Thank you for all your replies. I don`t know what kind of procedure they would have performed on me when I was an infant because they did not know what to do....
Jill. Long story short with me. Im sally. 30 years old. First shunted under emergency status when I was 23.A doctor did a cat scan and saw that my whole head...
Hi- My name is Jill and I was born with Dandy Walker Syndrome Hydrocephalus, and luckily mine was caught when I was barely a week old. I do have a slightly ...
so i found out i have dont have medical insurance..so unless it gets worse instead of better i'm thinking of not spending a thousand dollars on a catscan.. ......
my father, myself and my daughter ... From: monica thornton <monica_thornton2003@...> Subject: Re: [hydrocephalus] Porencephaly and hydrocephalus To:...
personally i have hydrocephalus.... my parents found out when i was about 6 months old... they were going to put a shunt in,,, but the next day i didnt need...
I've had my programmable shunt in since 2003, should I be expecting another surgery some time soon ? I have been having pain and a bit of nausea but I ...
yea..i'm going to make a appointment tomorrow morning when his office is open..it's hurting some right now but not to much..it was more this morning and last...
If it was me. I would be talking to my doctor about it. You probably just bruised it really bad but I would get it checked out just in case. Me, I have only...
i've had the same shunt since 1987 so it's probably a delta. it's hurt before but only when i was a kid. I hit my shunt a couple weeks ago at work(which i've...
I have had my shunt for over 5 years, in the beginning I had 11 surgeries one after the other very quickly. But for 5 years now I haven't had any. It literally...
I am not sure about you, but I think mine is starting to malfunction. I am currently awaiting a CT scan to see if there is a problem as I am having pain in...
I wish I could say something but wanted to let you know that we'll be thinking of you. I am going on 2 years with my own shunt and I have always just wanted...
On the 18th Iam having a codman hakmin programmable put in on my right side and wanted to know what anyone thought of them.Right now I have 2 pudentz-shulte vp...
I have a vp shunt and the NS keep playing with the setting. Could you give me any advice. Thanks, Erin ... From: Melissa <granada7@...> Subject: Re:...
I wish I could tell you everyone is different. I was put on lyrica 75 mg twice a day, now that want me to take neurotin for headaches because it is cheaper...
I have a programable shunt and I still get headaches and migraines. I had a brain tumor, though it disappeared, the only thing that was affected by it was my...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
