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Messages 1987 - 2016 of 2028   Oldest  |  < Older  |  Newer >  |  Newest
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1987
holiday greetings from Sweden Merja Tims mum Tim born 1992 with congenitalhydrocephalus and Oesophageal Atresia Have a look at www.hydrocefalus.com Would be...
hydro92se
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Dec 25, 2008
9:54 am
1988
holiday greetings from Sweden Merja Tims mum Tim born 1992 with congenitalhydrocephalus and Oesophageal Atresia Have a look at www.hydrocefalus.com Would be...
hydro92se
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Dec 25, 2008
9:54 am
1989
i'been having headaches off and on for a couple of weeks. I had a ct done and it showed mild enlargment of ventricles.I have pain meds for the headaches but...
tom
tomgpjr
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Jan 13, 2009
5:11 am
1990
... Dear Tom, You don`t say anything about a shunt. I don`t have one because they were not available when I was born. I also have different degrees of...
pjdkmc17
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Jan 13, 2009
8:02 pm
1991
How many of you out there have both conditions or have kin with both conditions? All I get as far as feedback on my condition is a shake of the head and "I...
pjdkmc17
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Jan 13, 2009
8:24 pm
1992
I have two shunts that have been in for 17 and 20 years tom parady,jr ... From: pjdkmc17 <pjdkmc17@...> Subject: [hydrocephalus] Re: headaches To:...
tom parady,jr
tomgpjr
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Jan 15, 2009
7:24 pm
1993
well Peter, I guess it's just you and Kaila - the 8th wonder of the world!!!!michelle...
michelle riggs
mlrmlr1
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Jan 19, 2009
1:46 am
1994
HI, my name is Erin and I have had 2 decompression  surgergries, 1-08, 11-08, and also 3 vp shunt replacemecements this last year, now My shunt is bad again...
Erin Nashed
nashederin
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Jan 19, 2009
3:34 am
1995
Erin, where are u at...what state? If u are in NJ let me know/ Nobody would listen to me as well or even help me regarding my hydro after my first...
srochman2000
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Jan 19, 2009
12:33 pm
1996
Has anyone had shunt malfuction symptoms and a ct show some enlargement then the symptoms go away? I had been having headaches back in December and a CT showed...
tom
tomgpjr
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Jan 19, 2009
1:57 pm
1997
I wanted to know if a ct showed enlargement of the posterior end of the ventricles or the back of the head if there would still be headaches in the front in...
tom
tomgpjr
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Jan 24, 2009
4:47 pm
1998
I have a programable shunt and I still get headaches and migraines. I had a brain tumor, though it disappeared, the only thing that was affected by it was my...
Melissa
granada7
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Jan 25, 2009
12:10 am
1999
I wish I could tell you everyone is different. I was put on lyrica 75 mg twice a day, now that want me to take neurotin for headaches because it is cheaper...
Melissa
granada7
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Jan 25, 2009
12:13 am
2000
I have a vp shunt  and the NS keep playing with the setting. Could you give me any advice. Thanks, Erin ... From: Melissa <granada7@...> Subject: Re:...
Erin Nashed
nashederin
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Jan 25, 2009
5:02 am
2001
On the 18th Iam having a codman hakmin programmable put in on my right side and wanted to know what anyone thought of them.Right now I have 2 pudentz-shulte vp...
tom
tomgpjr
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Feb 4, 2009
1:24 pm
2002
I wish I could say something but wanted to let you know that we'll be thinking of you. I am going on 2 years with my own shunt and I have always just wanted...
Melissa
granada7
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Feb 4, 2009
4:59 pm
2003
I am not sure about you, but I think mine is starting to malfunction. I am currently awaiting a CT scan to see if there is a problem as I am having pain in...
Sweetrse7@...
alittleprinc...
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Feb 8, 2009
8:05 am
2004
I have had my shunt for over 5 years, in the beginning I had 11 surgeries one after the other very quickly. But for 5 years now I haven't had any. It literally...
operagirldia@...
operagirldia
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Feb 8, 2009
1:55 pm
2005
i've had the same shunt since 1987 so it's probably a delta. it's hurt before but only when i was a kid. I hit my shunt a couple weeks ago at work(which i've...
Tim Landry
vikingfrogboi
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Feb 8, 2009
4:17 pm
2006
If it was me. I would be talking to my doctor about it. You probably just bruised it really bad but I would get it checked out just in case. Me, I have only...
Melissa
granada7
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Feb 8, 2009
4:58 pm
2007
yea..i'm going to make a appointment tomorrow morning when his office is open..it's hurting some right now but not to much..it was more this morning and last...
Tim L
vikingfrogboi
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Feb 8, 2009
9:06 pm
2008
I've had my programmable shunt in since 2003, should I be expecting another surgery some time soon ? I have been having pain and a bit of nausea but I ...
Sweetrse7@...
alittleprinc...
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Feb 9, 2009
7:36 pm
2009
personally i have hydrocephalus.... my parents found out when i was about 6 months old... they were going to put a shunt in,,, but the next day i didnt need...
monica thornton
monica_thorn...
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Feb 9, 2009
11:05 pm
2010
my father, myself and my daughter ... From: monica thornton <monica_thornton2003@...> Subject: Re: [hydrocephalus] Porencephaly and hydrocephalus To:...
monica thornton
monica_thorn...
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Feb 10, 2009
5:22 am
2011
so i found out i have dont have medical insurance..so unless it gets worse instead of better i'm thinking of not spending a thousand dollars on a catscan.. ......
Tim L
vikingfrogboi
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Feb 10, 2009
8:31 am
2012
Hi- My name is Jill and I was born with Dandy Walker Syndrome Hydrocephalus, and luckily mine was caught when I was barely a week old. I do have a slightly ...
Sweetrse7@...
alittleprinc...
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Feb 11, 2009
7:53 am
2013
Jill. Long story short with me. Im sally. 30 years old. First shunted under emergency status when I was 23.A doctor did a cat scan and saw that my whole head...
srochman2000
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Feb 11, 2009
3:18 pm
2014
Thank you for all your replies. I don`t know what kind of procedure they would have performed on me when I was an infant because they did not know what to do....
PETER MCNALLY
pjdkmc17
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Feb 11, 2009
3:56 pm
2015
Thank you for all your replies. I don`t know what kind of procedure they would have performed on me when I was an infant because they did not know what to do....
PETER MCNALLY
pjdkmc17
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Feb 11, 2009
3:56 pm
2016
Happy birthday peter! You truly are a miracle walking - and from my little miracle (kaila) to you - may you have many more! Michelle ... From:"PETER...
mriggs33@...
mlrmlr1
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Feb 11, 2009
5:35 pm
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