My name is Christelle and my dh and I are getting ready to adopt a little boy from Haiti. We were just contacted today and asked about a three year old little...
Hi, my name is June and my son was born at 30 weeks gestation and had his first shunt in at 38weeks gestation (and consequently, two revisions after that) he...
Junehew@...
Jun 4, 2003 5:31 pm
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Hi there Christelle! My name is Bianca. I have had a shunt since I was 3 months old (I'm now 25) I had several shunt revisions as an infant / toddler b/c of...
Hi! My older set of twins were born at 30 weeks also, but being twins, they were a little more mature and have done extrodinarly well (8y/o honor students, he...
Oh, I am so happy to speak with an adult that has been through this. I was a little worried that he may have trouble in school. How was school for you? And...
School was FINe. I did have to have a surgery when I was in 5th grade (they made the catheter that goes down into my stomach longer) My teacher used it as a...
In a message dated 6/4/2003 11:22:22 AM Pacific Daylight Time, ... yeah most are pretty much medical info...Theres a book called "hydrocephalus" that...
That is wonderful to know, my heart really goes out to this little guy, but another part of me is kinda nervous. I wonder if I can handle this and if I am the...
lol, I won't even let my healthy 8 y/o son play football because it's so dangerous, I don't think I feel let down at all by a no football rule. Before we...
In a message dated 6/4/2003 12:00:19 PM Pacific Daylight Time, ... My mom was left in the labor room w/o a doctor & got nfected with listeria bacteria (she...
Hi Christelle, I have a little boy named Dylan who will be three in September. He was born with Hydrocephalus and he also had an encephalocele (a gap in the...
My name is Dylan too! I've had hydrocephalus since age 7 (my first bout) and had had several revisions and replacements since. Other than memory problems I'm...
Hi Gina, My name is Valerie and my son, Dylan, will be three in September. He was born with hydrocephalus also. Does your 2-year old walk or talk yet? Just...
hi ny names Bianca. I got a shunt when I was 3 months old ..I think my hydro was caused my spinal meningitis. If it helps I didnt really talk until I was 3,...
Thanks Bianca, I am really proud of Dylan and all that he has accomplished. And, I don't usually care how behind he is, but last night I saw a little boy who...
Hi to the new people welcome :) Hey bianca you give me hope...my daughter was 6mos when shunted(that is how long it took them to found out what she had...she...
I Hey Deb yeah my mom said I didnt talk or walk until after 1. Its cool you taugt her to sign! Obviously she is bright :) My mom was afraid to let me walk so...
Also I have had the same shunt since I was 3 years old so I think at least you might not have to worry in that respect :) I had several sunut revisions before...
Bianca really the dr told us she could do anything except boxing and sky diving(which I would not even think of doing lol) and the other day she did fall...
thats good news and yes I think so too in the improvements biancansniffles@... wrote: Also I have had the same shunt since I was 3 years old so I think at...
Hi, My name is Edye. My 5-year-old son Logan has hydrocephalus. I've been lurking here for about 2 months just digesting information. Today I have a problem I...
Hi there my name is Kevin. i am 21yrs old. I have Congenial Hydrocephalus, although now my doctors are telling me that i have a rare form of it. apparently im...
I had a friend with a vp programmable shunt. She has had two revisions because the distal portion pulled out of the peritoneal (sp?) cavity. She thinks it...
Kevin, Hi Im sally. I too have a rare form of Hydro. I was diagnosed at age 23 and I just turned 25. I lived with Hydro all my life up until the age of 23....
Kevin, Hi! If your really interested in finding out the exact type keep asking till they tell you. I think with hydro it is very important that you know as...
HI Kevin I;m with you on the headaches but not the same problem...I have had the same shunt since age 3 but Ive also had HORRIBLE headaches my entire life (I;m...
I have been reading the messages recently from many of you and there are many of you suffering from headaches. Please look into a new shunt valve and/or...
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