there has to be soemthing to kill these headaches. im gunna go insane before im 30 for crying out loud! ... Topomax ... that i ... would ... August) ... ...
... help! ... the ... be ... do ... touch ... I to was born with hydro and am now 41 1/2 be 42 in Oct. I had a shunt replacement done last yr and believe it or...
Hi Harriet and Chris,         My name is Peter and I was also born with hydro. I also have porencephaly. I do not have a shunt. I am 64 years old. I...
Does anybody else with hydro get tired easily when walking or just doing ordinary things through the day? Â Sally ... From: PETER MCNALLY <pjdkmc17@...>...
I never really noticed. Though I think I attribute my tireness to my medicine. I have only had my shunt and hydro since last May 2007 so I am not sure if that...
hi sally, yes i do sometimes just doing the dishes wears me out. Laura and Ripple ... From: Sally Rochman To: hydrocephalus@yahoogroups.com Sent: Monday, July...
Please come visit me in my myspace.com/monicad1974 I have my hydro story and info I can pick up along the way plus a video of a doctor explaining hydro and...
After being on this list for a few years, I cannot understand why surgeons keep putting those programmable things in peoples' heads. Apparently the ...
psincer9:  One of the major reasons is that, in theory, there isn't nearly as much surgery w/programmables. If there is a need to change the settings, it...
hi Laura, Â My name is Mike im from Utah. I have hydro and unfortunately i also have rsd. I didnt even know what rsd was until my diagnosis 1 yr ago. i have...
i new here! ive recently been diagnosed with hydrocepalus after being really ill from an operation in april. im stilla t the stage where i find the whole...
Hi, I have acquired hydro from a brain abscess that I had in July 2000. After the first craniotomy with aspiration I had a open ventriculostomy, then the...
Diane: Â Headaches, at least in the experience of myself & many members of the support group I belong to, are often misdiagnosed as migranes, when they are...
Hi Diana, I get the nausea with mine. I am guessing that goes along with most. I do get light and hearing sensitivity, with pressure behind my eyes. Thanks ...
sorry i do not have an lp shunt but someone who I am related to by marriage had one but I think is going to have it converted to a vp shunt. But she has PTC...
I ve had my vp shunt for 7 years now. knock on wood everythign is working fine. i was diagnosed at the late age of 23 and i am now 30. If you feel like...
jw but have you ever had the problem with your shunt that your ct scans look fine and everything and your shunt is connected but you still feel very sick and...
you might not feel good still because you might need a diffrent pressure valve. their are diffrent pressures .5 1.0 and 2.0 and they work to fit your body so...
thank you so much . i did go back and tell him yea know i have had surgery twice this year already to know what a pressure headache feels like and he keeps...
Erin:  I had several shunt replacements from the ages of 3 mths (when I was diagnosed) to 2 yrs of age. I had one revision when I was 15 and six yrs...
Hi Erin, i do not have hydro myself, my daughter does she is 3 yrs old and has had several revisions. ***you know your own symptoms, so if you feel how you...
... (I guess this is as good a time to introduce myself as any...) Hi - I can relate some; I have a VP shunt (have had since I was around a month old - I have...
during the time your daughters shunt was over draining did the drs say that the ct scans and xrays looked fine? how were they able to tell what was going on? ...
i have had hydro since i was 2 wks old i had 12 surgries than and i had my surgery at queen of the valley and the shunt was inserted on the outside of my head...
hi my name is ashley austin when i was born at 2 wks old i had a shunt put in i had 12 surgeries because the shunt was put in several times at queen of the...
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