My name is Jennifer and I have congenital hydrocephalus. I would like to talk to anyone about this condition if they would like to talk to me. If you would...
Hi Jenn, I've never had an appendicitis but i've heard that surgery is not as complicated as it is for a shunt and recovery time is quicker. Feel better !! ...
Hi Jennifer, I have hydrocephalus from a cyst filled with cranial fluid. I do not have a shunt and am 64 years old. The condition is called porencephaly. I...
Thanks, I would also like to talk to you. ... Hi Jennifer, I have hydrocephalus from a cyst filled with cranial fluid. I do not have a shunt and am 64 years...
Hello Jennifer, I do not have congenital hydrocephalus, but I did wind up with it as a child due to heal trauma due to psychial abuse. I was abused by my...
Sarah, I would like to talk. You have to start a conversation, because I really don't know what to talk about. Hope to talk to you soon, Jennifer ... Welcome,...
Hi Jennifer, I hope you don`t have appendicitus. But they know how to fix it. You should be okay. How are the wildcats doing? We hear all about UC and Xavier...
Hey Peter, It is good to hear from you. The wildcats are doing pretty good. Considering where they started. Especially with a new coach and all. I think the...
Hi, At birth my baby's headsize was totally normal. WHen I took her in for her 2mo check i remember the nurse thinking she had measured her head wrong. The...
I wish I knew what to tell you. I didn't get hydrocephalus until I had radiation for a benign brain tumor, They couldn't operate due to it was to ingrained...
Thanks Melissa, Yes she is 4mo -we just found out almost 2wks ago now. I understand what you are saying. I was born with congenital heart defects and...
I have a nephew who is 5 now he has a twin brother. But my nephew Erik when my sister was 5 months pregnant they said that he only a had the brain stem but no...
Kind mothers ! My son Hristo is in 18 years with Hydrocephalus With a valve as well. Here in Bulgaria the doctor that will discover it and do not take the...
Dear Friend of Hydrocephalus WALK Edison-NJ 2008, We are just six months away from the 2008 Hydrocephalus WALK, to be held Sunday, September 7th at Roosevelt...
I have congenital hydrocephalus, which has been arrested for the last 20+ yrs. I was shunted, the first time, at 3 mths of age. After the age of 3 I had no...
... had ... living ... Saturday ... group. ... held ... (N. ... Thank you for your reply,I live in the UK, so the groups you mention are too far away for me to...
Hi, my name is Mags I have been a member of this group for quite some the now. I've only known that I have congenital hydrocephalus since I was twenty. Since...
... From: margaret croal To: hydrocephalus@yahoogroups.com Sent: Friday, April 04, 2008 12:21 PM Subject: [hydrocephalus] hydrocephalus and epilepsy Hi, my...
Hey Mags; Hey Sean - Yeah, congenital means you're born with it. If I've read Mags' intro properly, she didn't say she only had it since she was 20; she said,...
Sorry guys but i decided for once I need to vent .... I've had such a hard 3 weeks with really bad headaches - where I've had periods at work where I've had a...
Hi Sean I just want to clear up some misunderstandings. Nobody knew I had hydrocephalus until I was about 20. I was having hospital tests for a gynae problem(...
My name is Jennifer and I am 24 with hydrocephalus and I would just like to meet people that I could talk to over the internet. I want to be able to relate to...
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