Well Mr. Christopher has his cranial reconstruction done and they told me that it would be 7 - 9 hours in surgery. They started on him around 9 am and he was...
Jenna, I am really thriled evderything turned out okay. It is really a miracle what they can do today. I hope he has a full recovery and a happy life. All my...
Anyone heard that the "Protical"(sp) for brain tumors is to do 6-8 cycles of chemotherapy. That means cisplatin, vinchristine and lomustin and nausea...
isn't it amazing how quickly the little ones rebound? how old is christopher? Kaila (7) well 6 at the time - had a shunt revision and was running around th...
When I left the hospital they wanted me to do gait training, then when my PT told me I couldn't see her, had to see someone else. I didn't go. I did my best at...
I am so Glad and Happy for you all that he is making a fast recovery. Amazing how children recover. Now I just wish my 8 year old boy would be able to be cold...
I am currently 27 years old and married to a man with hydrocephalus. When we first met and for the first couple of years, yes, I knew he was slower and that he...
Christopher is 3 1/2 actually he turned 3 1/2 on the 19th of december. It does my heart good everytime he stands or even when he crawls and can hold his head...
Dear Megan, I knew I had hydrocephalus but my parents denied the fact and would not talk about it to me or anyone. They just ignored the troubles I had in...
I have a nephew that is 5 years old. He has hydrocephalus he has had 7 surguries everything from cranial reconstruction to double hernia and 2 eye operations...
Meghan, I am not qualified to give any concrete advice on this but I know you are looking for something from anywhere at this point. I feel for you in this...
My name is Jennifer and I have congenital hydrocephalus. I would like to talk to anyone about this condition if they would like to talk to me. If you would...
Hi Jenn, I've never had an appendicitis but i've heard that surgery is not as complicated as it is for a shunt and recovery time is quicker. Feel better !! ...
Hi Jennifer, I have hydrocephalus from a cyst filled with cranial fluid. I do not have a shunt and am 64 years old. The condition is called porencephaly. I...
Thanks, I would also like to talk to you. ... Hi Jennifer, I have hydrocephalus from a cyst filled with cranial fluid. I do not have a shunt and am 64 years...
Hello Jennifer, I do not have congenital hydrocephalus, but I did wind up with it as a child due to heal trauma due to psychial abuse. I was abused by my...
Sarah, I would like to talk. You have to start a conversation, because I really don't know what to talk about. Hope to talk to you soon, Jennifer ... Welcome,...
Hi Jennifer, I hope you don`t have appendicitus. But they know how to fix it. You should be okay. How are the wildcats doing? We hear all about UC and Xavier...
Hey Peter, It is good to hear from you. The wildcats are doing pretty good. Considering where they started. Especially with a new coach and all. I think the...
Hi, At birth my baby's headsize was totally normal. WHen I took her in for her 2mo check i remember the nurse thinking she had measured her head wrong. The...
I wish I knew what to tell you. I didn't get hydrocephalus until I had radiation for a benign brain tumor, They couldn't operate due to it was to ingrained...
Thanks Melissa, Yes she is 4mo -we just found out almost 2wks ago now. I understand what you are saying. I was born with congenital heart defects and...
I have a nephew who is 5 now he has a twin brother. But my nephew Erik when my sister was 5 months pregnant they said that he only a had the brain stem but no...
