... revisions since. On one of the shunts I had the so called ringing that you speak about. When the noise stopped the headaches began and sure enough the...
I have had headaches everyday. It hurts my school work and my job as well as those i care about. I have gone to the doctor and he says they same thing...
Hi Kayla, I also get headaches daily -- especially so since my last revision. I have had my shunt checked and it's working fine (since my last 2 revisions 2...
I can completely sympathize with you. I am 32 and have had congenital hydrocephalus for those 32 years. My parents were stumped as to what to do for me when...
I don't know what to say. My h/a got worse after the biopsy and stunt thing and i think i have spinal fluid pressure h/a (can't cough, or anything exertional,...
Just wanted to let you all know that Dec 19 I go in for a MRI again, for neck and head. I get zapped(my arms and hands do) every time I look at the floor HUGS ...
We are slowly getting ready for his big day on the 18th. Chris has no idea what is about to happen but I know in my heart this is the best christmas present I...
I wish you and your family the best during this difficult time Jennifer... ~Sally (fellow Hydrocephalus buddy) Jennifer <jenna1367@...> wrote: We are...
I will pray that you will be given strength during this difficult time. It is never easy for a parent to let their child go into surgery especially this kind...
Jenna, I know what you are going thru. My grandson had 2 major brain surgeries to remove a brain tumor deep in his brain around the hypothalamus. He was 16...
Well Mr. Christopher has his cranial reconstruction done and they told me that it would be 7 - 9 hours in surgery. They started on him around 9 am and he was...
Jenna, I am really thriled evderything turned out okay. It is really a miracle what they can do today. I hope he has a full recovery and a happy life. All my...
Anyone heard that the "Protical"(sp) for brain tumors is to do 6-8 cycles of chemotherapy. That means cisplatin, vinchristine and lomustin and nausea...
isn't it amazing how quickly the little ones rebound? how old is christopher? Kaila (7) well 6 at the time - had a shunt revision and was running around th...
When I left the hospital they wanted me to do gait training, then when my PT told me I couldn't see her, had to see someone else. I didn't go. I did my best at...
I am so Glad and Happy for you all that he is making a fast recovery. Amazing how children recover. Now I just wish my 8 year old boy would be able to be cold...
I am currently 27 years old and married to a man with hydrocephalus. When we first met and for the first couple of years, yes, I knew he was slower and that he...
Christopher is 3 1/2 actually he turned 3 1/2 on the 19th of december. It does my heart good everytime he stands or even when he crawls and can hold his head...
Dear Megan, I knew I had hydrocephalus but my parents denied the fact and would not talk about it to me or anyone. They just ignored the troubles I had in...
I have a nephew that is 5 years old. He has hydrocephalus he has had 7 surguries everything from cranial reconstruction to double hernia and 2 eye operations...
Meghan, I am not qualified to give any concrete advice on this but I know you are looking for something from anywhere at this point. I feel for you in this...
My name is Jennifer and I have congenital hydrocephalus. I would like to talk to anyone about this condition if they would like to talk to me. If you would...
Hi Jenn, I've never had an appendicitis but i've heard that surgery is not as complicated as it is for a shunt and recovery time is quicker. Feel better !! ...
Hi Jennifer, I have hydrocephalus from a cyst filled with cranial fluid. I do not have a shunt and am 64 years old. The condition is called porencephaly. I...
