my name is Kymberly my nephew was born with hdrocephalus he has a twin brother that is fine. I was trying to better understand what my nephew has he is 5 now...
Hydrocephalus Conference LetterHi all. I just wanted to pass this blurb on about the latest Hydrocephalus Assocition (California) is available by email. As is...
HI, I am Sue and am new to this site. My son Tom is 21 and was shunted at 3 weeks. He had a revision at 3, a staff infection at 6 and a blockage at 21. We have...
Hi Everybody! Hoping somebody here can help me (probably those with shunts who have had problems with them at any time). I've just hit the 2 month mark since I...
Well, I have a shunt, have had it for 5+ months now but I thought the ringing in my ears was the chemo and radiation I have been doing, but my doctor knows...
Seems like my h/a's got worse after the shunt, now I just feel more of the spinal fluid pressure when I do things. I go for another MRI Dec 19th and then...
After my first revision at 11 years of age -- I remember my headaches getting worse after my surgery. I think it was because i had soooo much fluid up there...
My name is Alice, mother of 15 year old Matthew with hydrocephalus due to a cranial bleed from ECMO treatment due to meconium aspiration, , VP shunt, one shunt...
... revisions since. On one of the shunts I had the so called ringing that you speak about. When the noise stopped the headaches began and sure enough the...
I have had headaches everyday. It hurts my school work and my job as well as those i care about. I have gone to the doctor and he says they same thing...
Hi Kayla, I also get headaches daily -- especially so since my last revision. I have had my shunt checked and it's working fine (since my last 2 revisions 2...
I can completely sympathize with you. I am 32 and have had congenital hydrocephalus for those 32 years. My parents were stumped as to what to do for me when...
I don't know what to say. My h/a got worse after the biopsy and stunt thing and i think i have spinal fluid pressure h/a (can't cough, or anything exertional,...
Just wanted to let you all know that Dec 19 I go in for a MRI again, for neck and head. I get zapped(my arms and hands do) every time I look at the floor HUGS ...
We are slowly getting ready for his big day on the 18th. Chris has no idea what is about to happen but I know in my heart this is the best christmas present I...
I wish you and your family the best during this difficult time Jennifer... ~Sally (fellow Hydrocephalus buddy) Jennifer <jenna1367@...> wrote: We are...
I will pray that you will be given strength during this difficult time. It is never easy for a parent to let their child go into surgery especially this kind...
Jenna, I know what you are going thru. My grandson had 2 major brain surgeries to remove a brain tumor deep in his brain around the hypothalamus. He was 16...
Well Mr. Christopher has his cranial reconstruction done and they told me that it would be 7 - 9 hours in surgery. They started on him around 9 am and he was...
Jenna, I am really thriled evderything turned out okay. It is really a miracle what they can do today. I hope he has a full recovery and a happy life. All my...
Anyone heard that the "Protical"(sp) for brain tumors is to do 6-8 cycles of chemotherapy. That means cisplatin, vinchristine and lomustin and nausea...
isn't it amazing how quickly the little ones rebound? how old is christopher? Kaila (7) well 6 at the time - had a shunt revision and was running around th...
When I left the hospital they wanted me to do gait training, then when my PT told me I couldn't see her, had to see someone else. I didn't go. I did my best at...
I am so Glad and Happy for you all that he is making a fast recovery. Amazing how children recover. Now I just wish my 8 year old boy would be able to be cold...
I am currently 27 years old and married to a man with hydrocephalus. When we first met and for the first couple of years, yes, I knew he was slower and that he...
Christopher is 3 1/2 actually he turned 3 1/2 on the 19th of december. It does my heart good everytime he stands or even when he crawls and can hold his head...
Dear Megan, I knew I had hydrocephalus but my parents denied the fact and would not talk about it to me or anyone. They just ignored the troubles I had in...
I have a nephew that is 5 years old. He has hydrocephalus he has had 7 surguries everything from cranial reconstruction to double hernia and 2 eye operations...
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