ok. everyone i have to ask this personal question sorry if you find it a rather unusual question. My husband has had hydro for three years now going on 4 he...
... From: dasy fahnestock To: hydrocephalus@yahoogroups.com Sent: Tuesday, September 04, 2007 1:03 PM Subject: Re: [hydrocephalus] new here ok. everyone i have...
Are there anyone who have both hearing loss and visual loss due to Hydrocephalus, to such an extent that you are classified as Deaf-Blind. Have you perhaps...
Ilana2@...
Sep 6, 2007 3:12 pm
1778
Why does headaches persist after Anti-Siphon Device implantation surgery? Ilana Deaf-Blind N24M 8/5/00 Nucleus Freedom 8/5/06 Ilana2@......
Ilana2@...
Sep 7, 2007 6:48 am
1779
What areas of the head will pain if headaches are caused by chronic shunt over-drainage and what areas of the head will pain if the headaches are caused by...
Ilana2@...
Sep 12, 2007 4:42 pm
1780
I've been getting headaches for months -- i had 2 revisions a little less than 2 years ago (due to a blockage) and since they we've determined that my shunt (i...
I have chronic head pain as well.? I have also had a CT scan which a NS determined that there was no need for surgery to fix the problem, and he referred me to...
I get the same kind of problems and the scans always show slits when my headaches come I can only get relief by lying down. I also have 2 shunts due to a...
Do you also have drainage coming out of your ears or ear plus severe pain which feels as if were deep inside the ear canal ?? I suffer from that problem pretty...
... surgery? ... migraines. After repeated cts and x- rays the doctors found out that other ventricles in my head had gone from the size of a pencil lead to ...
Hello Jennifer; I thought I had sent this earlier, but I don't see it up here. My IQ at two years old impressed my neurophsychologist alot. BUT... I have had...
Get your shunt replaced or repaired, keep at the doctors til they realise how serious it is, that's what I had to do for my son, he was rushed as an emergency...
Hi! im a mother of a six years old hydro child.His name is Jordan. He has vp shunt since he was 2 months old, he cant walk alone, he has very poor vision,...
Hi Everybody! I've recently had a VP shunt inserted (4 Sept 07).........and live in the UK..........I'm 38, not one of the younger person who get shunted!! ...
... From: "christine3438" <chris.taylor68@...> To: <hydrocephalus@yahoogroups.com> Sent: Saturday, October 27, 2007 7:04 AM Subject: [hydrocephalus]...
... From: "christine3438" <chris.taylor68@...> To: <hydrocephalus@yahoogroups.com> Sent: Saturday, October 27, 2007 8:04 AM Subject: [hydrocephalus]...
Hi Chris, I've had hydrocephalus since I was a born and have had a total of 7 revisions since I had a VP shunt placed at 3 weeks of age. I am 26 years old...
Can you explain what a revision is and what they do to do it or what they help?? Melissa ps. I can't do anything exertional or I get a headache and coughing...
A revision is done when the shunt is not working - such as it malfunctions or there is a blockage or some kind of obstruction that will prevent it from working...
I remember my first shunt revision at 11 was not easy (besides being a surprise to us) I was not allowed to sit up for the first 2 days and then couldn't get...
Hi Chris, I was 20 when I had my first VP shunt inserted in Edinburgh in 1983. As a result I know only too well that the after care for people who have had...
Hello. My name is Sally and I have Hydrocephalus too. I have posted here a few times. i was diagnosed late in life with hydo...i WAS diagnosed at age 21... ...
my name is Kymberly my nephew was born with hdrocephalus he has a twin brother that is fine. I was trying to better understand what my nephew has he is 5 now...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
