I am soon going to be making a long journey on a bus. I have had Hydrocephalus since birth and have many complications, including a brain infection, 10 shunt...
Jeff, As an overprotective mother, I would suggest you take a short trip on your own first before you try a long trip. Also, don't you have a friend that...
... Ah. An adventure. Congratulations! How far away are you travelling? So tell me more about this trip. Are you going with anyone? Alone? Not to spook you,...
grtings, i am lorene and my son was given 4hrs to live 38yrs ago. he had severe hydrocephalus, but is now autonomous; i wrote a book about my miracle son,...
What great advice you have given! I am new to hydrocephalus. Our son was born with congenital hydro, due to an arachnoid cyst. He was shunted at 3 weeks old...
my son was also born with congenital hydro and shunted at 3 weeks and is 3 yrs now , if u free to chat , pls add me to ur msn list , my add as follows - ...
Hello , My name is Ginger , I am 25 yrs old and live in Kentucky , I have had hydro since birth , and developed Epilepsy when I at the age of 2yrs old , and...
Jeff, I am not sure if you are the same person that is in VIPHydrocephalus, but in the US there is a disibility line for buses and you can get help. But if I...
I havae epilepsy. I have my liscence. However I do know each case is different. I have traveled some. however i have never flown. I have always taken a car...
Hello Lorene, Wow You have a book? I am working on one but do not have it done yet. I am also woorking on one with a group of friends. I would like to read...
Thank you all so much for the advice you gave concerning my trip. I have decided to compromise. I definitely am taking the trip. It will be a day and 10...
i would be very careful drinking alchol beverages and being on seizure med. This could cause you to have a seizure. Jeff <jeffersondavi21@...> wrote:...
"As I'm always telling my mom, stopping me from living isn't going to stop me from dying." Amen. Emilie ... From: Jeff To: hydrocephalus@yahoogroups.com Sent:...
... Great! That does about cover it. And since you're staying within your country that should simplify matters considerably. I have never been to another...
I just want to say thanks for all the support. To the overprotective moms out there, I say thanks for caring. My own mom is the same way, mainly out of fear....
P.S. Does anyone know if there is a medical correlation between Hydrocephalus and strokes? I had a stroke when I was 21 and I wondered if anyone else in this...
... Alas, there's a fine line between mothering and smothering. Even if it's well intended. It gives the impression a guy can't think for himself if a parent...
Jeff, Last time I heard they were about 100 dollars I think but they put your x-rays on the card and your shunt type and everything. I am not sure where to get...
... condition encouraging me to spread my wings a little. I haven't had a vacation in ages, and I am very very excited about this one. The worse thing I can...
What is the name of the book? ____________________________________________________________________________________ TV dinner still cooling? Check out...
X Linked Hydrocephalus X linked recessive hydrocephalus is the most common hereditary form of hydrocephalus. Genetic analysis indicates that the majority of...
Greetings: i am elihu & my wife's name is lorene. the name of the book is 'hallelujah! it's mother's miracle'. it is featured on amazon.com. may i send you my...
Dear Laura, Thank you very much! This answers a lot of questions for me. When I was born, thirty two years ago, very little was known about Hydrocephalus, so...
Hello Everyone, Please allow me to introduce myself, as I am new to this group. My name is Raj Khot and I live in Boston area. It is great to see you all...
Welcome Raj, ... "...who is a hydrocephalic..." he has hydrocephlaus; he isn't the condition itself. ... From: dk_khot To: hydrocephalus@yahoogroups.com Sent:...
I will get some information for you. There is a doctor Black there in Boston who is a neurosurgeon that I have heard some really good things about. As soon as...
Hello I also have epilepsy along with hydro since birth and I am just now getting able to get my lisence , If you or anyone that has epilepsy and hydro could...
Jeff , and or anyone who would like to chat other than the groups message me on yahoo messenger at .... ginger_dawn07 , i would like to talk to anyone , even...
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