hello! everybody my daughter TWINKLE is now at school, she is doing great in school, she loves to sing and dance the only problem is her speech due to cleft...
I have aquired hydro since I was 8 I am now 31. I have been having hydro complications for about 4 yeas now. I just had a partial revision to switch from VP to...
... revision ... Monica Im 39 have had hydro since birth and have always had a vp shunt. had complications til i was 11 or 12 but not too much since. I have a...
Hi Monica, Thought I would say hi and welcome to the group! I have been in this group for a while now. I will not bore you with my story since you already...
Ernie, We are not that far from each other. I am just north of Asheville. About 30 minutes from the TN line. I only found out about having hydro 3 years ago...
Hi, my name is Nelda and I have a son who was born 26 weeks premature, has hydrocephalus due to a grade IV interventricaular hemorrhage during birth. He has a...
hi, im a mother of a hydro child. he's now 4yrs old. he was shunted since he was 2 months old. he is a smart kid like a normal one.he's only problem is that he...
Hello, My name is Thomas, I do not have Hydrocephalus, but my brother John does. He's 39 now, and he's had the shunt since he was 8 years old. It's nothing...
Hi Nelda, My son was also born with hydro. they shunted him before he was 24 hrs. old, he is now 22 yrs.old. My son James has been turned down for the state...
Hi Nelda, I also have the same type of shunt as your sone. I had mine plased as part of a revision in 2004. Mine right now is set at the hightest setting and I...
Hi Beth, my son walks at 29 months and I think it comes from the brain coz the brain is the one that tells us what our body should do. He also is in therapy...
Hi Laura, do you know what kind of shunt do you have. You said you have the same as my son's. He's now on the lowest setting which is .5 ( before that, it was...
Hello, my name is Tom and I am writing on behalf of my brother John, who has Hydrocephalus and a shunt, as well as he is "legally Blind". As a concernend...
I'm new here and just wanted to say hello. My 5 year old daughter has hydrocephalus as a result of congential toxoplasmosis. I just needed to find a place to...
Hello Tom , I am 25 and have had hydro since birth , also was legally blind at one point but they done surgery and fixed that , it was because CSF was build up...
Hello, I am blind also and have hydrocephalus. I started a msn group for people with hydrocephalus and vision problems. It is called VIPHydrocephalus and is...
Hi Nelda, My shunt is a Medtronic Strata Valve. Laura ... From: valdeznelda To: hydrocephalus@yahoogroups.com Sent: Wednesday, August 23, 2006 8:10 PM Subject:...
... From: Laura To: hydrocephalus@yahoogroups.com Sent: Thursday, August 24, 2006 1:58 AM Subject: IRe: [hydrocephalus] Chatting. Hello, I am blind also and...
How do you join the msn group? I have msn messenger. Is it through that? __________________________________________________ Do You Yahoo!? Tired of spam?...
I to am partially blind in one eye. My hydro went undetected for almost 5 years. In that time the retina was washed away. I have almost full vision in one eye ...
good story really enjoyed reading this one. good luck to your brother. ... From: "John Taglienti" <taglientijohn@...> To: <hydrocephalus@yahoogroups.com>...
my mother n law lives kinda in that area i will ask her if she knows of any groups. I know when my husband got hydro 3years ago she did some research online...
I am also in the long island area but my daughter is only 11. ... __________________________________________________________________ Switch to Netscape...
Here is the VIP Hydrocephalus Group Link. http://groups.msn.com/VIPHydrocephalus I believe I put it in the links page also. You need to register your e mail ...
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