... From: weyerbws@... To: hydrocephalus@yahoogroups.com Sent: Thursday, June 01, 2006 1:38 AM Subject: Re: [hydrocephalus] Water and Hydrocephalus I can...
We've tried all the sippy cups and straws on the market.....but since she can not "suck" she doesn't get anything out....even with the ones that don't have a...
I'm 29 years old with a VP shunt. I have been having head pain for over a week now. It's mostly on one side of my head, my shunt side, and a lot of achiness...
Hi, I am new to this group. I was born with Hydrocephalus caused by Dandy-Walker Syndrome. I have been shunted since I was 2 months old and have had 15...
I have had hydro since birth and i have a Vp shunt also and i get lil pains and stuff around my pump and stuff ever now and then ....its never been nothing ,...
Hi Tara , my son was shunted also since he was 2months old. he is now 4yrs old. can i ask how old are you when you have your 2nd operation. can i have your...
I had my first 7 operation before I was 1. I had another 3 operations and an infection when I was 11. One operation when I was 14. And I had 5 operations...
Tara, i just wonder how you could cope up that multiple operation. its really a miracle. can i have your picture since you were a child and now that youre an...
Heather, My son James has been hydro. since birth (22 yrs.ago) I would aire on the side of caution, and go to the ER anyway. Just hopefully they have a good...
Hi Tara, I would like to say that there is little or no information availble to blind or vvisually impaired people. I have had to scan every book myself from...
Heather, I have never posted her before, but I am about your age. My name is Laura and I am 25 years old I have neuromurus revisions whil I was in school. I ...
Hi Tara, I have had lots of revisions too. I will post my story as soon as I can geti it off of my disk as my computer is still down. Ripplegirl99 ... From:...
Hi Melissa, I am alsovisully impaired. I have a guide dog. I have a hydro group for eople with hydro and vision problems. there are several more that have...
Hi A friend of my Son (Age 5), has unexplained partial blindness in his one eye ... he has had an MRI and Pressure tests done, with no real Hydro evidence. ...
Does anyone have a Programmable shunt? I had one put in back in 2003. I have been dealing with pain pretty much ever since it was put in. I have intense...
Hi Jill, I have a programmable shunt. I have a programmable Medtronic Strata Valve. I had mine placed as part of a valve revision in 2004. It was placed to...
Laura- I am so sorry to hear that. Have you ever had a whooshing sound in your ear? I currently have head pain on the top left side, and sometimes on my...
I had a codmann 18 stage programmable shunt when I was DX in 2002 and the setting was set too high which lead to a subdural hematoma and subsequent Crani. It...
I ran through a period in 2003 where my shunt kept malfunctioning. My NS presented me with the option of an ETV. He is one of the few if not the only one in ...
... Melissa, So you did not actually have the procedure? My NS said that I qualify as a candidate and he is one of the NS recommended by the Hydro. Society. I...
I did not have the procedure. I just wanted to let you know that also there are cons to having it there are also many pros to having the procedure. ...
Hello, I have some visual impairment due to hydrocephalus. I was born with lazy eye which might have been caused by hydrocephalus; however, I was never...
I had a shunt for six years and eventually had to have it replaced because I got Slit Ventricle Syndrome from over drainage. I had the ETV procedure and it...
Hi, I was wondering if anyone has experience with having a LP Shunt? I am having the surgery this Monday the 19th and although a little nervous I guess ready...
Hey i have a LP shunt too, i have had it for 8 yrs ....and have had a few probs with it , i ran into the corner of a table once and broke it straight...
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