hi Brenda, wow, our stories are so similar. It;s so nice to talk to people my age that have the same problems. My eye doctor was the first one to find a...
Hi Jamie! I is so fantastic to find someone else in Utah who is kind of going through the same thing as I am. My neurosurgoen was DR R Peterson is salt lake. I...
Hi Jamie! I is so fantastic to find someone else in Utah who is kind of going through the same thing as I am. My neurosurgoen was DR R Peterson is salt lake. I...
We did in fact try the head band, but the smart little tyke figured out that she could still take them off her nose and then they would get stuck in her ...
hey brenda, I am from Wisconsin, not Utah. I ended up going to Chicago to find my neurologist and neurosurgeon. They are wonderful! I do not work right now. i...
Well my son's next neuro appt. is on May 4th the office is about 5 hours away so we'll leave on weds. Either they will schedule for surgery or another appt. in...
Hi- I live in California. My name is Jill, and I have Dandy Walker Syndrome Hydrocephalus. My doctor's name is Sandeep Kunwar. He is out of UCSF. I don't...
How many of you have had a stroke due to a shunt surgery? I found out a few weeks ago that the reason why I was having so much trouble recovering is due to a...
... From: weyerbws@... To: hydrocephalus@yahoogroups.com Sent: Monday, May 01, 2006 13:25 Subject: [hydrocephalus] Leaving on glasses We did in fact try...
I did have glasses, but have gotten Lasik since Isabelle's gotten her glasses. However, she has two older sisters that have glasses (and she tries to pull...
Hello Everyone , I am 25 yrs old and I am from Kentucky , I have had hydro since birth , When I was born I was over 3 months earlie and had a stroke , I only...
We recently got back from our neuro appt. ang things went great. His brain is growing, against everything they said would happen he has made incrediable...
i don't know your whole story but it amazes me that the doctors are not always right. i know what they told me with my daughter, which was she would never...
I would like to know whether a long time exposure to sun in hot summer days cause any problem with VP shunt in a 3 yr old, he has joined pre kg recently, and...
... summer days cause any problem with VP shunt in a 3 yr old, he has joined pre kg recently, and does cycling for long hours in afternoon time , when the temp...
Hi I'm new here to the forum and I am looking forward to talking to all of you.My son is 16 years old now, he was diagnosed with hydrocephlaus at birth.I am a...
I am now 48yo and was DX in '02 with Congenital Hyrdro. I have had now 8 surgeries in 5yrs, including 2 crainiotomies. I just came home from the Hospital last...
... Hello my name is Renae. My son is 22 mo old and was diagnosed with hydro at birth. he has had many complications and it has been a very hard road. He's now...
Hi, everyone, I was wondering about something i heard concerning with body hydration and Hydrocephalus. What I was told was that people with Hydrocephalus ...
I can answer only in the fact that my daughter is continuously slightly dehydrated because she does not drink from normal bottles or a cup. So I would say...
... From: weyerbws@... To: hydrocephalus@yahoogroups.com Sent: Thursday, June 01, 2006 1:38 AM Subject: Re: [hydrocephalus] Water and Hydrocephalus I can...
We've tried all the sippy cups and straws on the market.....but since she can not "suck" she doesn't get anything out....even with the ones that don't have a...
I'm 29 years old with a VP shunt. I have been having head pain for over a week now. It's mostly on one side of my head, my shunt side, and a lot of achiness...
Hi, I am new to this group. I was born with Hydrocephalus caused by Dandy-Walker Syndrome. I have been shunted since I was 2 months old and have had 15...
I have had hydro since birth and i have a Vp shunt also and i get lil pains and stuff around my pump and stuff ever now and then ....its never been nothing ,...
Hi Tara , my son was shunted also since he was 2months old. he is now 4yrs old. can i ask how old are you when you have your 2nd operation. can i have your...
I had my first 7 operation before I was 1. I had another 3 operations and an infection when I was 11. One operation when I was 14. And I had 5 operations...
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