Hello to motorcitymissy from Susan from Ark. my son James (21) was shunted within 24 hours after birth, it has been about 4 yrs. since the last revision. We...
Debbie, We probably have so much in common that I am shaking my head, what school dist. are you with if you can tell me? We deal with 5th & 6th grade at a...
susan we are from Illinois. My husband was 30 when he got sick and dianosed with hydro since his surgery he has had abodimal pains and headaches like before...
Wow We share the same...We have between 10 to 12 kids and bounce back with the class next door with 10 kids grade k-3 we have 3-5thgrade We have downs cp...
Hi Susan, My name is Julia by the way.... If I may ask how many revisions has your son had? As of yet she is doing well developmentaly, but I cant say what the...
My shunt feels so bruised all of a sudden, I have no idea why...I have also been very dizzy again lately...I am not sure how to proceed. Dia DiCristino ...
I Have hydrocephlus I had your issue I used to at this point take tablets and go to bed turn off all the lights and sleep for a bit in a dark room sleep it...
Has anyone ever felt like their shunt is breaking out of their scalp? My head has expanded, seriously, my glasses won't fit now, and the shunt is sticking out...
Julia, I believe James has had about 6 or 7 revisions, all we have had to deal with is the headaches, moodiness, and alot of times where I ask him questions...
Hi Debbie, Well I started back to work this past week, and boy that first day was a waring one, my back hurt worse that my bad ankle, but I made it through....
Hi Dasy, He was denied twice for medicad, we have been waiting for the reconsideration on the disability, we do have a gentleman that is helping us this...
Susan WELCOME BACK TO SCHOOL!!!!! Hope it was a washable marker Susan Smith <tasd_sub@...> wrote: Hi Debbie, Well I started back to work this past week,...
Hi, Susan. I saw this post and thought that I should write because I have noticed something very similar in my girlfriend (who i'm pretty sure is a member of...
Mark, Glad to hear from you, sometimes James gets zoned into something like listening to music with his head phones on or he'll say he didn't hear me, but more...
Sorry dumb aussie blonde here...By revisions do you guys mean : MRI and CT check ups. I had a third vent done at age 32 and no shunt I never heard of this...
Now I could be wrong, but by revisions it means when the ns changes out the tubing connected to your shunt. At least that is what I had done over a dozen...
"Revision" typically means that a part of the shunt has been replaced or repaired...Sometimes only one part of the shunt is done, sometimes the entire shunt....
well...it has been a weird week. my shunt has been bulging out from my head, neck and chest...i have been in a lot of pain, and there is a lot of vibrating...
Hi Susan. I am convinced now that Hydrocephalus has a hand to play in the hearing thing. I have to deal with it all the time. When Laura and I first started...
I will be praying for you, and just maybe alot of those problems will be taken care of. Susan operagirldia@... wrote:well...it has been a weird week. my...
Correct!!!!!Susan LiseAnne Gaudet <danzac@...> wrote:HI there A revision is any kind of operation where they have to fix or replace any part of the shunt...
Hi I'm a mom of a 4 year old very high functioning autistic boy, He also was diagnosed with External hydrocephaly at 4 months. Until he was 3 we were just...
Check at the Hydrocephalus Association, www.hydroassoc.org . They have all sorts of information on hydrocephalus, and the rest of their contact info is on...
Richard, I was wondering at the age of 22 if you had any problems with looking for a job or not being to social? My son James who is 21 ( he's had hydro since...
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