Hi. I am new to this forum. I started out on the Arachnoid cyst group...but things have changed. We discovered my son had an arachnoid cyst (left temporal)...
Hi Jill, My name is Kelly, I have an 11.5 yr old boy that has ad a shunt since he was 3 weeks old. You ight want to call your NS, and tell him/her what has bee...
I have a question about a vp shunt. My 3 year old has had a shunt for 1 year without complications. His is for an arachnoid cyst. How do they add more tubing...
Hi Heather, I know with my daughter they coiled the shunt tube when they inserted it so the tubes"grows" with her. When she gets revisions they do the same...
When a shunt is first installed, they put a limited amount of tubing coiled up in the abdomenal cavety to uncoil as the patient grows. Often, an extension will...
HI Paul, Our NS said chances of blockage are the same wether is it coiled or not. Lise Anne ... From: psincer9@... To: hydrocephalus@yahoogroups.com Sent:...
Hi, I'm Katie, age 26, and I live in the UK. I was born with hydrocephalus and have a VP shunt. I don't know of anyone else with hydro, so I'm basically just...
Hi Katie my name is Leslie and my 8 month old son Dakota was diagnosed and shunted at 6 months old he has been doing wonderful since then but I was courious by...
Hi Leslie, I've had two revisions since leaving hospital after I was born - I was transferred from the hospital I was born in to one a few miles further from...
Welcome Katie Wow reading ur story I would swear u were my daughter however she was shunted at 6mos of age has had no revisions she will be 11 this Thurs. She...
Hi Debbie, I have problems with balance too - I go through periods when I seem to fall over a lot, and it always seems to be on the same side. I have also worn...
Hi Katie Wow She will do the same on balance on one side and freaks when we have to use the escalator at the mall the elevator use to scare her but not now....
hi Katie Thanks for taking the time to share your story. I know everyone different but getting a glimpse of what others have gone thru i feel helps prepare me...
I like your email address; just thought I'd let you know. Don't mind me. By the way, I'm Emilie. I was born 3 months premature and aquired hydro (and...
hey you guys! after Kota's surgery in May he has been doing really good catching up with "normal" babies as far as sitting up, standing, scooting, etc. my...
Hi all, Been away on holiday in the Lake District (North West England, not far from the Scottish border) so will reply to bits and pieces all in one mail :) ...
Some say nothing but I was always told to protect the head. Angie fell down the stairs when she was about 12 years old and the next day we were in the ...
Hi Katie, Its nice to meet you, I am mom to James (21 yrs. old) he was shunted shortly after birth. He has had about six revisions done to this date, the only...
Heather, When my son had to have his shunt fixed, after seeing the CAT scan then they determine what needs to be done. If its just the tubing they do need to...
im 29 i hav a shunt in my head and in my back both put in be for i was a year old and had no revised. they say the one in my back dock dont work any more. but...
i was shunted at 1 week old and didnt need one for 10 years, this could possibly happen to you since there have been advancements in the technology of shunts,...
Heather- It all depends on what the ns finds on your son's scan as to what course of action he takes. Most likely though if he finds that your son's tubing ...
In a message dated 8/23/2005 10:01:29 A.M. Pacific Daylight Time, tasd_sub@... writes: Susan I was shunted right infancy as well. I am now 29 and on my...
Jill, You sound as if you are doing pretty well, we have been blessed these last couple of months that James (21) has had no headaches, we just take one day at...
Hey Susan What do u do? I as well work for the school district my d has had her shunt since 6mos old she just turn 11 this Aug (no revisions) Susan Smith...
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