Hi everyone! I am 43 years old and have a 6 year old with hydro- resulting from her having an IVH (brain bleed)at a few days old. I have read everything I...
Hi, my name is June and I wanted you to know that I will responding to you in the next few days and hope I can be of help to you. I have a son (he's 12 now)...
Junehew@...
Feb 12, 2003 11:54 pm
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Nice to meet you ok raining your way toohun...How is your son doing? My daughter has has a rough few weeks does not like change too much and her teacher would...
When I was in school I to was not allowed to take part in contact sports. I was often left on the sidelines when my class played soccer, did gymnatics. I was ...
Hi pam I have had hydrocephalus since birth almost--or rather a shunt from birth almost... My mother ALWAYS told my schools (elementary, junior high etc) "no...
Bianca, Well this is so scary! Thanks for letting me know I have to keep on my toes! ~Pam~ biancansniffles@... wrote: Hi pam I have had hydrocephalus since...
My name is Melissa. I am looking to find any information about the procedure called Endoscopic Third Ventriculostomy. If you have had this done can you please...
Melissa, The info I found on this is from the book titled Hydrocephalus. It is as follows. Page 100; Endoscopic Third ventriculostomy In peforming a third...
Pam, Thank you for the information your took the time to find. It was very informative. I had found those sites but they seem to be one sided (towards it being...
Melissa and fiancee, Your very welcome! I should have known you would have checked the web. Alot of what helped me make my decision when Mary Ann had this...
Hi I am new to the group. I have a daughter who is 11 months old. She had a shunt placement at 5 wks old. I had noticed her head enlarging, and getting...
In a message dated 2/27/2003 11:02:45 AM Eastern Standard Time, ... you reminded me of something kinda funny that happened while Chris was in ICU with the...
those residents can be something hun....I remember taking my daughter in urgent care and he kept coming in telling me I didnt know what i was talking about I...
In a message dated 2/27/2003 2:18:08 PM Eastern Standard Time, cmcs21@... ... hi Misty, welcome to the group. i worked in the group health insurance...
If youre in CA you can get Healthy Families Insurance or Medi Cal...I;m hydrocephalic & when I was dropped rrom my Moms insurance (at age 24) I got a letter...
Hello You have to go to the medicaid office and file for insurance for your child, they should not refuse him since he has a disability. the best thing to do...
Re: insurance Hey I can tell you what happen with me I was covered when I was working for a company but my child was on mine and hubby's so when I left I...
Melissa and Jay, She had the procedure at 16 months but it didn't help her fluid levels. She has since then had a shunt and 2 revisions but has been symtom...
Ha ha! I swear we could have the same person we are talking about! That is how my daughters neuro pronounces it, with a k sound instead of an s like it should...
Misty, I am not sure in your area (I am in Wyoming) but most insurance considers hydro a pre-exisiting condition and will not cover it until anywhere from 3-12...
Aloha Misty, I do not know what state you are in but have you tried to get SSI for your daughter? They also have Medicaid attached to it as well as Medicaid...
Hi my name is Travis williams I have had hydro since I was 2, I am now 21. I am cuurently working for Walmart and was fortunate that They have great Ins. BUT i...
hey you should try to look for a different job that at least uses your mind a little...maybe a county or city job? My mom works for the county (I;m covered by...
this will be my last post before we leave in the morning; i have set all my lists to digest, so as to (theoretically) not clog up my mail box. i will post on...
hi, as you know, Chris had a revision last week, and is recovering nicely. in fact, he is determined to bowl tonight on his usual league. he swears that if...
Hey Maggie Been there done that I have an ex that I had to deal with too...totally brainwashed the kids but when they got old enough to see what their mom was...
hi I have a question does anyone in this group suffer from seizures. I have seizures but the doctor that i went to said that it was not possible but some of...
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