Search the web
Sign In
New User? Sign Up
hydrocephalus · Support Group
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want to share photos of your group with the world? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Messages 1999 - 2028 of 2028   Oldest  |  < Older  |  Newer >  |  Newest
Messages: Simplify | Expand   (Group by Topic) Author Sort by Date ^
1999
I wish I could tell you everyone is different. I was put on lyrica 75 mg twice a day, now that want me to take neurotin for headaches because it is cheaper...
Melissa
granada7
Offline Send Email
Jan 25, 2009
12:13 am
2000
I have a vp shunt  and the NS keep playing with the setting. Could you give me any advice. Thanks, Erin ... From: Melissa <granada7@...> Subject: Re:...
Erin Nashed
nashederin
Offline Send Email
Jan 25, 2009
5:02 am
2001
On the 18th Iam having a codman hakmin programmable put in on my right side and wanted to know what anyone thought of them.Right now I have 2 pudentz-shulte vp...
tom
tomgpjr
Offline Send Email
Feb 4, 2009
1:24 pm
2002
I wish I could say something but wanted to let you know that we'll be thinking of you. I am going on 2 years with my own shunt and I have always just wanted...
Melissa
granada7
Offline Send Email
Feb 4, 2009
4:59 pm
2003
I am not sure about you, but I think mine is starting to malfunction. I am currently awaiting a CT scan to see if there is a problem as I am having pain in...
Sweetrse7@...
alittleprinc...
Offline Send Email
Feb 8, 2009
8:05 am
2004
I have had my shunt for over 5 years, in the beginning I had 11 surgeries one after the other very quickly. But for 5 years now I haven't had any. It literally...
operagirldia@...
operagirldia
Offline Send Email
Feb 8, 2009
1:55 pm
2005
i've had the same shunt since 1987 so it's probably a delta. it's hurt before but only when i was a kid. I hit my shunt a couple weeks ago at work(which i've...
Tim Landry
vikingfrogboi
Online Now Send Email
Feb 8, 2009
4:17 pm
2006
If it was me. I would be talking to my doctor about it. You probably just bruised it really bad but I would get it checked out just in case. Me, I have only...
Melissa
granada7
Offline Send Email
Feb 8, 2009
4:58 pm
2007
yea..i'm going to make a appointment tomorrow morning when his office is open..it's hurting some right now but not to much..it was more this morning and last...
Tim L
vikingfrogboi
Online Now Send Email
Feb 8, 2009
9:06 pm
2008
I've had my programmable shunt in since 2003, should I be expecting another surgery some time soon ? I have been having pain and a bit of nausea but I ...
Sweetrse7@...
alittleprinc...
Offline Send Email
Feb 9, 2009
7:36 pm
2009
personally i have hydrocephalus.... my parents found out when i was about 6 months old... they were going to put a shunt in,,, but the next day i didnt need...
monica thornton
monica_thorn...
Offline Send Email
Feb 9, 2009
11:05 pm
2010
my father, myself and my daughter ... From: monica thornton <monica_thornton2003@...> Subject: Re: [hydrocephalus] Porencephaly and hydrocephalus To:...
monica thornton
monica_thorn...
Offline Send Email
Feb 10, 2009
5:22 am
2011
so i found out i have dont have medical insurance..so unless it gets worse instead of better i'm thinking of not spending a thousand dollars on a catscan.. ......
Tim L
vikingfrogboi
Online Now Send Email
Feb 10, 2009
8:31 am
2012
Hi- My name is Jill and I was born with Dandy Walker Syndrome Hydrocephalus, and luckily mine was caught when I was barely a week old. I do have a slightly ...
Sweetrse7@...
alittleprinc...
Offline Send Email
Feb 11, 2009
7:53 am
2013
Jill. Long story short with me. Im sally. 30 years old. First shunted under emergency status when I was 23.A doctor did a cat scan and saw that my whole head...
srochman2000
Offline Send Email
Feb 11, 2009
3:18 pm
2014
Thank you for all your replies. I don`t know what kind of procedure they would have performed on me when I was an infant because they did not know what to do....
PETER MCNALLY
pjdkmc17
Offline Send Email
Feb 11, 2009
3:56 pm
2015
Thank you for all your replies. I don`t know what kind of procedure they would have performed on me when I was an infant because they did not know what to do....
PETER MCNALLY
pjdkmc17
Offline Send Email
Feb 11, 2009
3:56 pm
2016
Happy birthday peter! You truly are a miracle walking - and from my little miracle (kaila) to you - may you have many more! Michelle ... From:"PETER...
mriggs33@...
mlrmlr1
Offline Send Email
Feb 11, 2009
5:35 pm
2017
Sally- Thank you for the information. I am a little confused though, your ns told you that pain in the shunt area was the normal healing process ? Mine was...
Sweetrse7@...
alittleprinc...
Offline Send Email
Feb 11, 2009
6:34 pm
2018
Peter- First off, Happy Birthday ! I am overjoyed to know now that life expectancy is not very short as I was led to believe years ago ! Do you have...
Sweetrse7@...
alittleprinc...
Offline Send Email
Feb 11, 2009
6:38 pm
2019
Jill, Yes. I just went on friday for a follow up and told him that I was having some headaches and my shunt area was sore.....I just had surgery on Dec 30 so...
srochman2000
Offline Send Email
Feb 11, 2009
6:43 pm
2020
Sally- I have had monitoring of my shunt, but have not had a scan in some time. The ns that I was seeing in SF is no longer my dr. because he was a...
Sweetrse7@...
alittleprinc...
Offline Send Email
Feb 11, 2009
7:06 pm
2021
Hmmm....NO I have never had the drainage from the ear thing...and whenever I bend over or get up quickly I feel the pressure and i have to take a sec to get my...
srochman2000
Offline Send Email
Feb 11, 2009
9:05 pm
2022
I am waiting on my insurance and my primary care to refer me out. Hopefully it is not the same doctor I saw the last time ! He didn't seem to be or want to...
Sweetrse7@...
alittleprinc...
Offline Send Email
Feb 11, 2009
9:11 pm
2023
Dear Jill,      I have one child of my own and three step-children. They are not children any more.      My three step-sons are 47,46 and 44. My son...
PETER MCNALLY
pjdkmc17
Offline Send Email
Feb 12, 2009
1:55 am
2024
Dear Michelle,            Thank you very much, and may you raise Kaila to be as wonderful and kind as you...
PETER MCNALLY
pjdkmc17
Offline Send Email
Feb 12, 2009
2:01 am
2025
I am having a problem, and need some advice from other adults with shunts. I was diagnosed with Hydro at four weeks, and have had many shunt revisions, my...
Jeff
jw774
Offline Send Email
Feb 17, 2009
9:30 pm
2026
hi im 19 years old and i have had hydracephalus since i was 2 wks old and whenever i have had pains such as yours or have heard buzzing coming from my shunt or...
ashley rolon
baby_spice91711
Offline Send Email
Feb 18, 2009
5:10 am
2027
Hi Hydrocephalus, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you...
Duncan Salloway
grizz1ywired
Offline Send Email
Mar 9, 2009
9:05 pm
2028
ijust sent u an invite to be my friend on FB.... ... From: Duncan Salloway <grizz1ywired@...> Subject: [hydrocephalus] Check out my Facebook profile To:...
Sally Rochman
srochman2000
Offline Send Email
Mar 10, 2009
2:24 pm
Messages 1999 - 2028 of 2028   Oldest  |  < Older  |  Newer >  |  Newest
Advanced
Add to My Yahoo!      XML What's This?

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help