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hydrocephalus database survey   Message List  
Reply | Forward Message #972 of 2028 |
Re: hydrocephalus database survey

I completed it for my father, because there is little follow up for
older patients with Normal Pressure Hydrocephalus. I think a national
database is important to track the success, failure, and complications
of treatment.

My dad's neurosurgeon never suggested any follow up visits or tests
except on an "as needed" basis. Without annual visits, I wonder how the
outcome of shunt surgery for elderly patients can be predicted? His
neurologist had recommended *against* surgery (he'd be in a nursing
home if we had followed her advice).

Maybe this database can help doctors and patients better evaluate the
options.

Pat S.








Sun May 1, 2005 9:51 pm

pat_sabin
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Forward
Message #972 of 2028 |
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The Hydrocephalus Association is conducting a survey to gather accurate facts regarding people who have hydrocephalus. This information will be used to help...
june_moser
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Apr 21, 2005
8:57 pm

I'm sorry.Can't do it.I have had my idenity stolen before(caught him) and I refuse to give the information needed for this over the internet because I do not...
Tim L
vikingfrogboi
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Apr 21, 2005
9:04 pm

On the Hydrocephalus Association website there is an explanation of their privacy policy regarding the survey. June ... the information needed for this over...
june_moser
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Apr 22, 2005
1:30 am

not intersteead in providing any of this info that they are asking for to confidential i don't want to have identy theft. june_moser <June.Moser@...>...
dasy fahnestock
number_9child
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Apr 21, 2005
11:46 pm

You can also take the survey over the phone, by calling 888-598-3789 or 415-732-7040, or request a paper copy be mailed or faxed to you by calling either of...
Richard
alienwebmaster
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Apr 22, 2005
5:34 pm

I completed it for my father, because there is little follow up for older patients with Normal Pressure Hydrocephalus. I think a national database is...
pat_sabin
Offline Send Email
May 1, 2005
9:51 pm
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