Hi my son has hydrocephalus. He was diognosed Nov 6th.2003,Since that time hes had a shunt placemant, On Dec 12th 2003. Feb 29nth it failed and he went comotosed for 18 hr . of course he had a revision. On april 16 2004 they cracked his skull open and put a hole in the mass. They say all looks goood but he is suffering from headaches daily. He is trying him on diffrent things to try to get them stopped. He has been seeing dustin quite freaquantly since all this started so i thank god for this ns/ He has tried a few things. But since two days ago,He started him on Bextra/.Pain managemant people willl find the right medication that works for you and helps u/My name is Darlene My son is fifteen

Sweetrse1@... wrote:

Hi-

My name is Jill, and I have Dandy Walker Syndrome Hydrocephalus.  I have had it since infancy.  Well, it was diagnosed at about six weeks.  Anyhow, I have had over a done surgeries.  Mostly revisions though.  I recently had my VP shunt replaced with a Programmable one last August.  Ever since that time I have had pain in my head.  It seems like pressure going down my face.  It sort of feels like water in a cooler when you take some out.  LOL  My ns sent me in for an MRI and I recently found out from him that my ventricles are the best he has ever seen them.  That there is no hydrocephalus present or something like that.  Meanwhile though I am still suffering with the pain.  I can't bend down to pick something up off the floor without there being intense pressure pain.  His nurse called and informed me that there didn't seem to be a problem and that he wants me to see a Pain Managemnt person.  Can someone tell me what that is?  How long does it usually take etc?  I was able to take Norco a little while back and that really helped my pain, but when I asked if I could get a perscription for that, they said no.  I am currently on Darvocet.  Any help would be greatly appreciated.

Thank you-

Jill

Ps.... I am 28 yrs old.  Will be 29 in October.