... From: "Danielle Cobb" <danielle_cobb@...> To: <hydrocephalus@eGroups.com> Sent: Monday, December 20, 1999 12:44 Subject: [hydrocephalus] hi ... not...

Hello Dani, Nice to meet you my name is Jeff and I am a 16/m from Texas and I have had hydrocephalus since birth! Want to know anymore? email me back thanks, ...

hey there how r u. i have had hydrocephalus since birth too. im 21 living in Philadelphia....

Hi my name is Travis Williams I was diagnosed with hydro at the age of two. I am now 21. I graduated from HS in 2000. I am now trying to find a college that...

Ive had it from birth also, I had a shunt put in at 5 months and a 3rd ventrigulostomy <sp> at age 15, Ive never had any rivisions on my shunt so I guess I've...

Hi Meghan! Nice to meet you. Pam Meghanx379@... wrote:Ive had it from birth also, I had a shunt put in at 5 months and a 3rd...

Hi Meghan You and my daughter are alike she had her shunt in at 6mos no revisions and the only different too is her balance(and alot of kids pick up on it and...

... 3rd ... shunt so I guess ... from anyone ... and still I am ... introduce mself :) ... Hi Meghan! Your case sounds exactly the same as mine, except that...

HI MEGHAN!...

Hi Well for those who remember me asking about the soccer information. I ended up calling the neurosurgeon at Toronto's Hospital for Sick Children. They...

Lise, I am glad you and Danika came to a compromise. I have been worried about Ian too! Haven't heard anything. Pam LiseAnne Gaudet...

hi, My unborn baby has been diagnosed with having hydrocephalus, and now i'm having routine checkups done by an ultrasound. I was wondering if anybody out...

well, its good you found out! i developed it at 3 months old and now i am 25. I think everything will be fine as long as you communicate w/ your ob...have they...

Hi I found out my baby had hydro at 18wks. On Monday the 4th I'm going to have a fetal MRI done. At my last ultrasound they found that I am 29wks but the...

Hi Kristin, My unborn baby was diagnosed with hydrocephalus when I was 16 weeks pregnant. He was also diagnosed with an encephalocele (a gap in the skull in...

Does anybody know how many people are in the USA living with Hydrocephalus? Sally (diagnosed with Hydro at age 23) Valerie Gavin <vgavin@...> wrote: Hi...

Hi Valerie, I had a fetal MRI done monday, and it wasn't has bad as most people say it is. I actually almost fell asleep when they weren't talking to me lol....

What exactly is a fetal MRI an dhow is it done> sunshine_girl1802 <sunshine_girl1802@...> wrote: Hi Valerie, I had a fetal MRI done monday, and it...

Hi, Fetal MRI is just a regular MRI they just call it a "fetal" b/c the doctors are taking pictures of the baby while its still in the belly. I already gotten...

Wow Im sooo jealous they never thought of doing something like that on me when I was pg and the ultrasound pic showed a large head in fact I had to have a c...

hey, is your son walking yet? I didnt walk on my own until I was 3 and a half......

Dear Meghan, He can walk while holding my hand, but he can't walk on his own yet. But he can crawl like a madman. You wouldn't believe how fast he can go! ...

not off hand but the odds are listed on a lot of the websites about it...

I heard there was 2 x-links one where the mother is the actual carrier and one where the egg is malformed when being developed. Does anyone know of this there...

Sunshine, From the book Hydrocephalus by Chuck Toporek and Kellie Robinson: X-linked hydro is almost exclusively a genetic disorder passed from Mother to son...

is there any minimum age recommended for ETV or can it be done at any age Ali ... From: Harriet To: hydrocephalus@yahoogroups.com Sent: Sunday, January 23,...

i new here! ive recently been diagnosed with hydrocepalus after being really ill from an operation in april. im stilla t the stage where i find the whole...

sorry i do not have an lp shunt but someone who I am related to by marriage had one but I think is going to have it converted to a vp shunt. But she has PTC...