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Hi! My older set of twins were born at 30 weeks also, but being twins, they were a little more mature and have done extrodinarly well (8y/o honor students, he plays b-ball, she cheerleads, they both do gymnastics, sorry for the parental bragging, they have broken all the prognosis given at birth). I have been looking at different sites on-line. I know he probably got hydrocephalus from toxoplasmosis during pregnancy (very common in third world countries), and american doctors put the shunt in quite quickly. Apperantly the medical intervention was done so well that he now no longer qualifies to live in the handicapped orphanage he is in so I'm trying to find a different orphanage to take him till we can get all of our paperwork done. I have spoken with a woman who has met him face to face, she says he is very lively and you wouldn't know anything is wrong with him except that he has a bald patch on the back of his head from the surgery. We live outside of Jacksonville Fl and we have one of the best children's hospitals and clinics in the country. Also my husband is military and our insurance accepts pre-existing conditions. Most of my questions have to do with day to day living, like, can he play tee-ball, or will sports be something he wont be able to do. How many times a year should he see a neurologist, and how many times does the average child outgrow his shunt and need it replaced? These things aren't real clear on the websites I've found. I havn't even seen him and I'm already worrying over him like a mother. Isn't that funny?
----- Original Message -----From: Junehew@...Sent: Wednesday, June 04, 2003 1:31 PMSubject: Re: [hydrocephalus] introductionHi, my name is June and my son was born at 30 weeks gestation and had his first shunt in at 38weeks gestation (and consequently, two revisions after that) he is now 13 years old. Any questions that I can help you with, i would be more than happy to. I guess MY first question would be do you have enough information on hydrocephalus? What city do you live in?I also work in san francisco at a non-profit agency called Support For Families of Children with Disabilities.
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