I have had my shunt for over 5 years, in the beginning I had 11 surgeries one after the other very quickly. But for 5 years now I haven't had any. It literally feels like my shunt has moved to a different spot inside my neck, and in my head the valve is down further than what it used to be. My stomach is in serious pain and tenderness, and I have formed a swelling on the opposite side, and am wondering if my shunt has actually twisted around. I have a lot of swollen lymph nodes in my body and wonder if these could actually cause the shunt to shift.

I have an appointment with a vp shunt specialist in London, but they can't fit me in until the middle of march. I am just wondering if I should drive all the way to oxford where they have a decent neuro hospital, to visit their er.

I am scared, I can feel my shunt moving all of the time, and it is hard to not think about it. If anyone else has experienced this can you please write me back?

Cheers,
D