Erin,
where are u at...what state? If u are in NJ let me know/ Nobody
would listen to me as well or even help me regarding my hydro after
my first surgery...i went to a wonderful NS and am now well enough to
return to work today....Let me know if u would travel to NJ. that is
where I am located...
hope u will start feeling better, but my advice is to see another
NS....
Sally
--- In hydrocephalus@yahoogroups.com, Erin Nashed <nashederin@...>
wrote:
>
> HI, my name is Erin and I have had 2 decompression  surgergries, 1-
08, 11-08, and also 3 vp shunt replacemecements this last year, now
My shunt is bad again and my NS will not listen to me, Do you have
any help for me. I am in alot of pain, and haveong seizures,
everyday. Please let me know ,Hope you are haveing a good day, Erin
>
> --- On Thu, 1/15/09, tom parady,jr <tomgpjr@...> wrote:
>
> From: tom parady,jr <tomgpjr@...>
> Subject: Re: [hydrocephalus] Re: headaches
> To: hydrocephalus@yahoogroups.com
> Date: Thursday, January 15, 2009, 7:24 PM
>
>
>
>
>
>
>
>
>
>
> I have two shunts that have been in for 17 and 20 years
>
>
>
> tom parady,jr
>
> --- On Tue, 1/13/09, pjdkmc17 <pjdkmc17@yahoo. com> wrote:
>
>
> From: pjdkmc17 <pjdkmc17@yahoo. com>
> Subject: [hydrocephalus] Re: headaches
> To: hydrocephalus@ yahoogroups. com
> Date: Tuesday, January 13, 2009, 3:02 PM
>
>
>
>
> --- In hydrocephalus@ yahoogroups. com, "tom" <tomgpjr@ > wrote:
> >
> > i'been having headaches off and on for a couple of weeks. I had a
ct
> > done and it showed mild enlargment of ventricles.I have pain meds
for
> > the headaches but they don't seem to work.The pain hasn't reached
an
> > unbearable stage they are more of an annoyance.They also come and
go
> > and show up later.
> > Tom parady,Jr
> >
>
>
> Dear Tom,
> You don`t say anything about a shunt. I don`t have one because
> they were not available when I was born. I also have different
degrees
> of headaches. Some are mild and some feel like my head is in a vice.
> Others are severe but they don`t last very long about a minute or
so.
> Most of the time I don`t have headaches and there is no set pattern
to
> the headaches. I have seen a neurologist but he says I am doing
> amazingly well. I just tolerate mine.
> Peter
>