How many of you out there have both conditions or have kin with both
conditions? All I get as far as feedback on my condition is a shake of
the head and "I don`t know why you survived or are able to function
normally." Peter
How many of you out there have both conditions or have kin with both conditions? All I get as far as feedback on my condition is a shake of the head and "I...
personally i have hydrocephalus.... my parents found out when i was about 6 months old... they were going to put a shunt in,,, but the next day i didnt need...
my father, myself and my daughter ... From: monica thornton <monica_thornton2003@...> Subject: Re: [hydrocephalus] Porencephaly and hydrocephalus To:...
Hi- My name is Jill and I was born with Dandy Walker Syndrome Hydrocephalus, and luckily mine was caught when I was barely a week old. I do have a slightly ...
Jill. Long story short with me. Im sally. 30 years old. First shunted under emergency status when I was 23.A doctor did a cat scan and saw that my whole head...
Thank you for all your replies. I don`t know what kind of procedure they would have performed on me when I was an infant because they did not know what to do....
Thank you for all your replies. I don`t know what kind of procedure they would have performed on me when I was an infant because they did not know what to do....
Happy birthday peter! You truly are a miracle walking - and from my little miracle (kaila) to you - may you have many more! Michelle ... From:"PETER...
Sally- Thank you for the information. I am a little confused though, your ns told you that pain in the shunt area was the normal healing process ? Mine was...
Jill, Yes. I just went on friday for a follow up and told him that I was having some headaches and my shunt area was sore.....I just had surgery on Dec 30 so...
Peter- First off, Happy Birthday ! I am overjoyed to know now that life expectancy is not very short as I was led to believe years ago ! Do you have...
Hmmm....NO I have never had the drainage from the ear thing...and whenever I bend over or get up quickly I feel the pressure and i have to take a sec to get my...
I am waiting on my insurance and my primary care to refer me out. Hopefully it is not the same doctor I saw the last time ! He didn't seem to be or want to...
Dear Jill,     I have one child of my own and three step-children. They are not children any more.     My three step-sons are 47,46 and 44. My son...
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