From: jaxxmc200 <jaxxmc200@...>
Subject: [hydrocephalus] (unknown)
To: hydrocephalus@yahoogroups.com
Date: Tuesday, October 7, 2008, 10:32 PM

Hi Erin, i do not have hydro myself, my daughter does she is 3 yrs old
and has had several revisions.

***you know your own symptoms, so if you feel how you felt before then
i would be concerned.** *

i hav had to struggle to get drs to listen to me when i KNEW her shunt
wasn't working. Maryam had her shunt go a couple of times close
together..it took her a little longer to recover-balance was off..a
little clumsy etc, but the difference was noticable immedietly. Maryam
also had a period of over draining(8monthsish ) we suffered several
blockages over that time due to her ventrical collapsing around the
catheter...then as the pressure built back up it would push the brain
back and would continue to overdrain for a period. drs wouldnt do
anything about it because they said can be very difficult to remedy. :(
I hope you get sorted soon.
Jackie.

--- In hydrocephalus@ yahoogroups. com, Erin Nashed <nashederin@ ...>
wrote:
>
> Hi, I am new to this group. I was decompressed( for Chiari
Malformation) in 1-08. Then in April I had a VP shunt put in for hydro-
PCT. I had a shunt replacement on Oct. 15th, because it had shut down
and clogged up. Then 2 weeks later it was bad again. So on Oct.2nd, my
NS replaced it again. I am still not feeling well at all. After the
first replacement, I felt a difference immediately. This time is awful.
Could it be because it is sooooo close together? Or could it be it is
not working right again? Any help would be apprecciatted, please. How
many shunts have you had replaced? Thanks for all your help. Good day,
Erin
>