hi my name is ashley austin when i was born at 2 wks old i had a shunt
put in i had 12 surgeries because the shunt was put in several times
at queen of the valley and they messed up i was in icu and than my
shunt became infected so i was airlifted to childrens orange county
where they finally fixed it my first revision was at 9 years old first
grade. i have had my shunt a 1.0 shunt for 10 years off my life and
now 19 years old i have had 2 surgeries this year. i am having severe
headaches now and my ct scans and xrays look normal my shunt is
functioning and everything but i might need a pressure valve a
diffrent one but neuros dont think so because everything looks fine so
i feel horrible. i have never talked to anyone with hydro ever i just
found this group and its kind of conferting. if you have yahoo
messenger mine is baby_spice91711@... please contact me if you
ever need help with anything



--- In hydrocephalus@yahoogroups.com, "elana_schwartz"
<elana_schwartz@...> wrote:
>
> Hi Harriet!
>
> I was born with hydrocephalus and would love to keep in touch with
> you. I'd love to talk with you ... do you by any chance have AOL
> Instant Messenger (AIM) or Yahoo Messenger?
>
> Elana
>
>
>
> --- In hydrocephalus@yahoogroups.com, "Harriet" <glittermoon@> wrote:
> >
> > Hello, My name is Harriet, and I am trying to find people with
> > Hydrocephalus who were born with it, and might be able to keep in
> > touch with me. As a lot of you out there do, I feel rejected in some
> > ways by society, I feel I don't fit in, can't get people to
> > understand my difficulties as life long difficulties, am always told
> > I am making excuses. I am feeling suicidal because no one takes the
> > time to understand and go through things with me, and my
> > doctors/psychiatrist and C.P.N make assumptions, judgements or
> > decisions which have no bearing on what I NEED, but it seems to be
> > all about what THEY think I need, and has nothing whatsoever to do
> > with MY immediate needs.
> > I am so distraught and frightened that there is no doctor or anyone
> > out there to help me.
> >
> > I would appreciate any support, or any doctor out there who could
> > give me some advice and/or help, or just anyone I can keep in touch
> > with that can identify with me.
> >
> > Thank you for reading this. PLEASE HELP!
> >
> >
> > Harriet.
> >
>