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and i hope everything gets sorted i have had hydro since i was 2 wks old i had 12 surgries than and i had my surgery at queen of the valley and the shunt was inserted on the outside of my head and it fell out than after like 3 -5 surgeries there my shunt even became infected i was airlifted to orange childrens hospital and i had my shunt put in good there and first revision was first grade after i had it put in and i had 3 surgeries in first grade and this year ive already had 2 revisions because my shunt keeps stop working. so far now i have had 3 x rays and ct scans and everything shows up normal and my shunt is draining but im feeling pressure headaches and am sleeping all day i get really sleepy they keep asking are you pregnant and im not they constantly check but now they are telling me that mayebe i need to get a spine mri to see if something is wrong with my ba ck but its like its not my back they dont wanna listen
From: jaxxmc200 <jaxxmc200@...>
To: hydrocephalus@yahoogroups.com
Sent: Tuesday, October 7, 2008 3:32:09 PM
Subject: [hydrocephalus] (unknown)
Hi Erin, i do not have hydro myself, my daughter does she is 3 yrs old
and has had several revisions.
***you know your own symptoms, so if you feel how you felt before then
i would be concerned.** *
i hav had to struggle to get drs to listen to me when i KNEW her shunt
wasn't working. Maryam had her shunt go a couple of times close
together..it took her a little longer to recover-balance was off..a
little clumsy etc, but the difference was noticable immedietly. Maryam
also had a period of over draining(8monthsish ) we suffered several
blockages over that time due to her ventrical collapsing around the
catheter...then as the pressure built back up it would push the brain
back and would continue to overdrain for a period. drs wouldnt do
anything about it because they said can be very difficult to remedy. :(
I hope you get sorted soon.
Jackie.
--- In hydrocephalus@ yahoogroups. com, Erin Nashed <nashederin@ ...>
wrote:
>
> Hi, I am new to this group. I was decompressed( for Chiari
Malformation) in 1-08. Then in April I had a VP shunt put in for hydro-
PCT. I had a shunt replacement on Oct. 15th, because it had shut down
and clogged up. Then 2 weeks later it was bad again. So on Oct.2nd, my
NS replaced it again. I am still not feeling well at all. After the
first replacement, I felt a difference immediately. This time is awful.
Could it be because it is sooooo close together? Or could it be it is
not working right again? Any help would be apprecciatted, please. How
many shunts have you had replaced? Thanks for all your help. Good day,
Erin
>
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