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Reply | Forward Message #1920 of 2028 |
(No subject)

Hi Erin, i do not have hydro myself, my daughter does she is 3 yrs old
and has had several revisions.

***you know your own symptoms, so if you feel how you felt before then
i would be concerned.***

i hav had to struggle to get drs to listen to me when i KNEW her shunt
wasn't working. Maryam had her shunt go a couple of times close
together..it took her a little longer to recover-balance was off..a
little clumsy etc, but the difference was noticable immedietly. Maryam
also had a period of over draining(8monthsish) we suffered several
blockages over that time due to her ventrical collapsing around the
catheter...then as the pressure built back up it would push the brain
back and would continue to overdrain for a period. drs wouldnt do
anything about it because they said can be very difficult to remedy. :(
I hope you get sorted soon.
Jackie.


--- In hydrocephalus@yahoogroups.com, Erin Nashed <nashederin@...>
wrote:
>
> Hi, I am new to this group. I was decompressed(for Chiari
Malformation) in 1-08. Then in April I had a VP shunt put in for hydro-
PCT. I had a shunt replacement on Oct. 15th, because it had shut down
and clogged up. Then 2 weeks later it was bad again. So on Oct.2nd, my
NS replaced it again. I am still not feeling well at all. After the
first replacement, I felt a difference immediately. This time is awful.
Could it be because it is sooooo close together? Or could it be it is
not working right again? Any help would be apprecciatted, please. How
many shunts have you had replaced? Thanks for all your help. Good day,
Erin
>





Tue Oct 7, 2008 10:32 pm

jaxxmc200
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Message #1920 of 2028 |
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Hi, I am new to this group. I was decompressed(for Chiari Malformation) in 1-08. Then in April I had a VP shunt put in for hydro-PCT. I had a shunt...
Erin Nashed
nashederin
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Oct 7, 2008
3:37 pm

I ve had my vp shunt for 7 years now.  knock on wood everythign is working fine.  i was diagnosed at the late age of 23 and i am now 30.  If  you feel like...
Sally Rochman
srochman2000
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Oct 7, 2008
3:42 pm

Erin:   I had several shunt replacements from the ages of 3 mths (when I was diagnosed) to 2 yrs of age.  I had one revision when I was 15 and six yrs...
Diana Pozzi
dfpoz
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Oct 7, 2008
6:27 pm

Thank-You for your help. Have a good day, Erin ... From: Diana Pozzi <dfpoz@...> Subject: Re: [hydrocephalus] (unknown) To: hydrocephalus@yahoogroups.com...
Erin Nashed
nashederin
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Oct 9, 2008
5:06 pm

Hi Erin, i do not have hydro myself, my daughter does she is 3 yrs old and has had several revisions. ***you know your own symptoms, so if you feel how you...
jaxxmc200
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Oct 7, 2008
11:01 pm

... (I guess this is as good a time to introduce myself as any...) Hi - I can relate some; I have a VP shunt (have had since I was around a month old - I have...
idjones942
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Oct 9, 2008
4:25 pm

my nephew has hdrocephalus he is 6 years old he has a twin named jonathan. He is pretty incredible kid he has had 6 surguries since he was born. ... From:...
kymberley bullock
kymtimmyjd
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Oct 10, 2008
2:38 pm

o wow hes had a lot when i was born i had 12 surgeries at 2 wks old 3 att 9 years old and two so far this year and i am 19 ... From: kymberley bullock...
ashley rolon
baby_spice91711
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Oct 10, 2008
11:53 pm

I just found out from a NS in NC Dr. Rosner that the shunts right now are not going to help me because my brain is compressed still. Even though I had...
Erin Nashed
nashederin
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Oct 11, 2008
5:22 pm

... now are not going to help me because my brain is compressed still. Even though I had decompression surgery in 1-08. I will have to have it again, soon....
hamptonman12002
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Oct 12, 2008
5:31 am

So I think you are saying when she had a replacement, if it was good there was a difference immediatelly.But after each time it took longer to recover.. Is...
Erin Nashed
nashederin
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Oct 9, 2008
5:06 pm

My daughter has had 6 shunts altogether, she has also had surgery for a birth defect on her skull a menigo-encephalocele(related to spina bifida but on the...
jaxxmc200
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Oct 26, 2008
11:13 pm
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