Erin:
I had several shunt replacements from the ages of 3 mths (when I was diagnosed) to 2 yrs of age. I had one revision when I was 15 and six yrs later had the tubing removed because of an infection. I've been without tubing (considered arrested) for over 25 yrs.
Over the yrs I've had headaches & not felt well when my shunt wasn't functioning, but it was still connected. A CT scan wouldn't have shown anything, it was a short term thing that resolved itself. Usually, docs go by a number of things--whether you are throwing up, have a fever, etc. But everyone is different. I, for example, don't have fevers w/illness, so judging on that alone would be an inaccurate measure of whether or not I was sick.
When I had the staph infection (that led to the tubing removal), I felt fine until the night I was taken to the ER. I had a terrible headache that wouldn't quit, no appetite & was extremely dehydrated. Within fifteen minutes of my surgery (I had it done w/a local anesthetic) I felt better! I was eating & just felt generally better than I had.
For me, headaches also aren't necessarily a sign, in & of themselves, of something being wrong. I occasionally have hydro related, pressure headaches. Since I have lived w/them all my life, I know the difference between them & a tension or migrane headache. Yes, I have light & sound sensitivity, but not nausea or other symptoms that n/s usually ask about. Unfortunately, a lot of medical professionals confuse hydro/pressure headaches (w/light & sound sensitivity) w/migranes, when they aren't the same at all! I've had friends who have had both migranes & hydro related headaches, they have assured me that there is a BIG difference!
Just remember that everyone is different/unique & to ask questions. It is a big help to keep a log of questions to take w/you to the n/s, or any doctor's appt.
Take care.
Diana
--- On Tue, 10/7/08, Erin Nashed <nashederin@...> wrote: From: Erin Nashed <nashederin@...> |
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