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Reply | Forward Message #1918 of 2028 |
Re: [hydrocephalus] (unknown)

thank you so much . i did go back and tell him yea know i have had surgery twice this year already to know what a pressure headache feels like and he keeps telling me well everything looks fine he doesnt wanna operate because my shunt is fine but he doesnt wanna take into consideration that my shunt might be draining too fast.. and the neuros at childrens hospital are the only ones i know off. thank you so much for msging me backk i have never talked to anyone at all that has hydracephilus

----- Original Message ----
From: Sally Rochman <srochman2000@...>
To: hydrocephalus@yahoogroups.com
Sent: Tuesday, October 7, 2008 8:42:06 AM
Subject: Re: [hydrocephalus] (unknown)

I ve had my vp shunt for 7 years now.  knock on wood everythign is working fine.  i was diagnosed at the late age of 23 and i am now 30.  If  you feel like something isnt right then i would go back to the NS and have it checked out.  only you know how your body should feel. Good luck Erin.
 
Sally

--- On Tue, 10/7/08, Erin Nashed <nashederin@yahoo. com> wrote:
From: Erin Nashed <nashederin@yahoo. com>
Subject: [hydrocephalus] (unknown)
To: hydrocephalus@ yahoogroups. com
Date: Tuesday, October 7, 2008, 10:48 AM

Hi, I am new to this group. I was decompressed( for Chiari Malformation) in 1-08. Then in April I had a VP shunt put in for hydro-PCT. I had a shunt replacement on Oct. 15th, because it had shut down and clogged up. Then 2 weeks later it was bad again. So on Oct.2nd, my NS replaced it again. I am still not feeling well at all. After the first replacement, I felt a difference immediately. This time is awful. Could it be because it is sooooo close together? Or could it be it is not working right again? Any help would be apprecciatted, please. How many shunts have you had replaced? Thanks for all your help. Good day, Erin
Tue Oct 7, 2008 4:22 pm

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baby_spice91711
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Forward 		Message #1918 of 2028 |
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My beautiful son has acquired Hydro. He was born with heart defects that were not detected until my wife and I took him to the emergency room at 3am on the... 		maec_40
Offline Send Email 		Oct 8, 2003
1:25 pm

Hi, There have been cases of Hydrocephalus symptoms going away, it is called arrested hydrocephalus. Even in this case the shunt is not removed as far as I...
Pam
big_bronco_mama
Offline Send Email 		Oct 8, 2003
7:44 pm

_HYDROCEPHALUS_ (http://www.health.adelaide.edu.au/paed-neuro/hydro.html) _Hydrocephalus Association_ (http://www.hydroassoc.org/) _Hydrocephalus / Family...
vernalrose@...
vernalrose
Offline Send Email 		Mar 7, 2006
11:19 pm

jw but have you ever had the problem with your shunt that your ct scans look fine and everything and your shunt is connected but you still feel very sick and...
ashley rolon
baby_spice91711
Offline Send Email 		Oct 7, 2008
4:47 pm

Yes, you can`t trust ctscans. ... From: ashley rolon <baby_spice91711@...> Subject: Re: [hydrocephalus] (unknown) To: hydrocephalus@yahoogroups.com Date:...
Erin Nashed
nashederin
Offline Send Email 		Oct 9, 2008
5:06 pm

you might not feel good still because you might need a diffrent pressure valve. their are diffrent pressures .5 1.0 and 2.0 and they work to fit your body so...
ashley rolon
baby_spice91711
Offline Send Email 		Oct 7, 2008
4:47 pm

thank you so much . i did go back and tell him yea know i have had surgery twice this year already to know what a pressure headache feels like and he keeps...
ashley rolon
baby_spice91711
Offline Send Email 		Oct 7, 2008
4:47 pm

You have to have the pressure check, There are two ways, 1 to tapp the vpshunt, 2 to have a spinal tapp. Good day, Erin ... From: ashley rolon...
Erin Nashed
nashederin
Offline Send Email 		Oct 9, 2008
5:06 pm

during the time your daughters shunt was over draining did the drs say that the ct scans and xrays looked fine? how were they able to tell what was going on? ...
ashley rolon
baby_spice91711
Offline Send Email 		Oct 9, 2008
5:05 pm

hi..sorry for the delayed reply, my daughter hasnt been well..but ok now:) my daughter ct scan showed that the ventricals were quite small compared to previous...
jaxxmc200
Offline Send Email 		Oct 24, 2008
2:37 pm

hello again..i just remembered something that may be of use to you regarding your headaches. the times you get the headaches can give you a good idea whether...
jaxxmc200
Offline Send Email 		Oct 24, 2008
2:37 pm

i have had hydro since i was 2 wks old i had 12 surgries than and i had my surgery at queen of the valley and the shunt was inserted on the outside of my head...
ashley rolon
baby_spice91711
Offline Send Email 		Oct 9, 2008
5:05 pm

i feel like ive been having pressure headaches i feel like theres too much pressure in my head. ive been tired nauseated i keep getting ct scans done and my...
ashley rolon
baby_spice91711
Offline Send Email 		Oct 24, 2008
4:41 pm

Just wanted to add a note. I had a headache for 2 years once. It never went away. Then one day I gave blood at church and my headache went away. It would...
karen
earthtokaren
Offline Send Email 		Nov 5, 2008
4:49 pm
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