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Reply | Forward Message #1915 of 2028 |
Re: [hydrocephalus] (unknown)

I ve had my vp shunt for 7 years now.  knock on wood everythign is working fine.  i was diagnosed at the late age of 23 and i am now 30.  If  you feel like something isnt right then i would go back to the NS and have it checked out.  only you know how your body should feel. Good luck Erin.
 
Sally

--- On Tue, 10/7/08, Erin Nashed <nashederin@...> wrote:
From: Erin Nashed <nashederin@...>
Subject: [hydrocephalus] (unknown)
To: hydrocephalus@yahoogroups.com
Date: Tuesday, October 7, 2008, 10:48 AM

Hi, I am new to this group. I was decompressed( for Chiari Malformation) in 1-08. Then in April I had a VP shunt put in for hydro-PCT. I had a shunt replacement on Oct. 15th, because it had shut down and clogged up. Then 2 weeks later it was bad again. So on Oct.2nd, my NS replaced it again. I am still not feeling well at all. After the first replacement, I felt a difference immediately. This time is awful. Could it be because it is sooooo close together? Or could it be it is not working right again? Any help would be apprecciatted, please. How many shunts have you had replaced? Thanks for all your help. Good day, Erin
Tue Oct 7, 2008 3:42 pm

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srochman2000
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Forward 		Message #1915 of 2028 |
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Hi, I am new to this group. I was decompressed(for Chiari Malformation) in 1-08. Then in April I had a VP shunt put in for hydro-PCT. I had a shunt... 		Erin Nashed
nashederin
Offline Send Email 		Oct 7, 2008
3:37 pm

I ve had my vp shunt for 7 years now.  knock on wood everythign is working fine.  i was diagnosed at the late age of 23 and i am now 30.  If  you feel like...
Sally Rochman
srochman2000
Offline Send Email 		Oct 7, 2008
3:42 pm

Erin:   I had several shunt replacements from the ages of 3 mths (when I was diagnosed) to 2 yrs of age.  I had one revision when I was 15 and six yrs...
Diana Pozzi
dfpoz
Offline Send Email 		Oct 7, 2008
6:27 pm

Thank-You for your help. Have a good day, Erin ... From: Diana Pozzi <dfpoz@...> Subject: Re: [hydrocephalus] (unknown) To: hydrocephalus@yahoogroups.com...
Erin Nashed
nashederin
Offline Send Email 		Oct 9, 2008
5:06 pm

Hi Erin, i do not have hydro myself, my daughter does she is 3 yrs old and has had several revisions. ***you know your own symptoms, so if you feel how you...
jaxxmc200
Offline Send Email 		Oct 7, 2008
11:01 pm

... (I guess this is as good a time to introduce myself as any...) Hi - I can relate some; I have a VP shunt (have had since I was around a month old - I have...
idjones942
Offline Send Email 		Oct 9, 2008
4:25 pm

my nephew has hdrocephalus he is 6 years old he has a twin named jonathan. He is pretty incredible kid he has had 6 surguries since he was born. ... From:...
kymberley bullock
kymtimmyjd
Online Now Send Email 		Oct 10, 2008
2:38 pm

o wow hes had a lot when i was born i had 12 surgeries at 2 wks old 3 att 9 years old and two so far this year and i am 19 ... From: kymberley bullock...
ashley rolon
baby_spice91711
Offline Send Email 		Oct 10, 2008
11:53 pm

I just found out from a NS in NC Dr. Rosner that the shunts right now are not going to help me because my brain is compressed still. Even though I had...
Erin Nashed
nashederin
Offline Send Email 		Oct 11, 2008
5:22 pm

... now are not going to help me because my brain is compressed still. Even though I had decompression surgery in 1-08. I will have to have it again, soon....
hamptonman12002
Offline Send Email 		Oct 12, 2008
5:31 am

So I think you are saying when she had a replacement, if it was good there was a difference immediatelly.But after each time it took longer to recover.. Is...
Erin Nashed
nashederin
Offline Send Email 		Oct 9, 2008
5:06 pm

My daughter has had 6 shunts altogether, she has also had surgery for a birth defect on her skull a menigo-encephalocele(related to spina bifida but on the...
jaxxmc200
Offline Send Email 		Oct 26, 2008
11:13 pm
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