----- Original Message -----

From: Sally Rochman

To: hydrocephalus@yahoogroups.com

Sent: Monday, July 21, 2008 1:08 PM

Subject: Re: [hydrocephalus] Re: Looking for friends who can relate to my difficulties

Does anybody else with hydro get tired easily when walking or just doing ordinary things through the day?   Sally --- On Mon, 7/21/08, PETER MCNALLY <pjdkmc17@...> wrote: From: PETER MCNALLY <pjdkmc17@...> Subject: Re: [hydrocephalus] Re: Looking for friends who can relate to my difficulties To: hydrocephalus@yahoogroups.com Date: Monday, July 21, 2008, 1:05 PM Hi Harriet and Chris,          My name is Peter and I was also born with hydro. I also have porencephaly. I do not have a shunt. I am 64 years old. I would love to chat with you both. My email is PJDKMc17@yahoo. com --- On Tue, 7/15/08, hamptonman12002 <hamptonman12002@ yahoo.com> wrote: From: hamptonman12002 <hamptonman12002@ yahoo.com> Subject: [hydrocephalus] Re: Looking for friends who can relate to my difficulties To: hydrocephalus@ yahoogroups. com Date: Tuesday, July 15, 2008, 6:39 AM --- In hydrocephalus@ yahoogroups. com, "Chris" <cgk1964@... > wrote: > > Hi Harriet. > > My name is Chris - I'm 44, and have had hydrocephalus for all my > life. I can certainly understand everything not being able to fit > in, and can really relate to being told that I am making excuses. > > TURNS OUT I had ADD on top of it, and going on Ritalin was a big help! > > I'd be thrilled to keep in tocuh with you. > > Please contact me when you want. > > Chris > > --- In hydrocephalus@ yahoogroups. com, "Harriet" <glittermoon@ > > wrote: > > > > Hello, My name is Harriet, and I am trying to find people with > > Hydrocephalus who were born with it, and might be able to keep in > > touch with me. As a lot of you out there do, I feel rejected in > some > > ways by society, I feel I don't fit in, can't get people to > > understand my difficulties as life long difficulties, am always > told > > I am making excuses. I am feeling suicidal because no one takes the > > time to understand and go through things with me, and my > > doctors/psychiatris t and C.P.N make assumptions, judgements or > > decisions which have no bearing on what I NEED, but it seems to be > > all about what THEY think I need, and has nothing whatsoever to do > > with MY immediate needs. > > I am so distraught and frightened that there is no doctor or > anyone > > out there to help me. > > > > I would appreciate any support, or any doctor out there who could > > give me some advice and/or help, or just anyone I can keep in touch > > with that can identify with me. > > > > Thank you for reading this. PLEASE HELP! > > > > > > Harriet. > > >Harriet I to was born with hydro and am now 41 1/2 be 42 in Oct. I had a shunt replacement done last yr and believe it or not was in and out of the hospital in 24 hrs. other than the hydro i have no other complications like I have read on here so I feel pretty fortunate, I work at a hotel and I drive my own car. I also know that " glass bubble" feeling I was that way and now that I am an adult I find it hard to do things that normal kids do like socialize, I had no friends and by the way im still single. you can write me any time at egoodman4@twlakes. net