--- In hydrocephalus@yahoogroups.com, "Chris" <cgk1964@...> wrote:
>
> Hi Harriet.
>
> My name is Chris - I'm 44, and have had hydrocephalus for all my
> life. I can certainly understand everything not being able to fit
> in, and can really relate to being told that I am making excuses.
>
> TURNS OUT I had ADD on top of it, and going on Ritalin was a big
help!
>
> I'd be thrilled to keep in tocuh with you.
>
> Please contact me when you want.
>
> Chris
>
> --- In hydrocephalus@yahoogroups.com, "Harriet" <glittermoon@>
> wrote:
> >
> > Hello, My name is Harriet, and I am trying to find people with
> > Hydrocephalus who were born with it, and might be able to keep in
> > touch with me. As a lot of you out there do, I feel rejected in
> some
> > ways by society, I feel I don't fit in, can't get people to
> > understand my difficulties as life long difficulties, am always
> told
> > I am making excuses. I am feeling suicidal because no one takes
the
> > time to understand and go through things with me, and my
> > doctors/psychiatrist and C.P.N make assumptions, judgements or
> > decisions which have no bearing on what I NEED, but it seems to
be
> > all about what THEY think I need, and has nothing whatsoever to
do
> > with MY immediate needs.
> > I am so distraught and frightened that there is no doctor or
> anyone
> > out there to help me.
> >
> > I would appreciate any support, or any doctor out there who could
> > give me some advice and/or help, or just anyone I can keep in
touch
> > with that can identify with me.
> >
> > Thank you for reading this. PLEASE HELP!
> >
> >
> > Harriet.
> >
>Harriet
I to was born with hydro and am now 41 1/2 be 42 in Oct. I had a
shunt replacement done last yr and believe it or not was in and out
of the hospital in 24 hrs.
other than the hydro i have no other complications like I have read
on here so I feel pretty fortunate, I work at a hotel and I drive my
own car. I also know that " glass bubble" feeling I was that way and
now that I am an adult I find it hard to do things that normal kids
do like socialize, I had no friends and by the way im still single.
you can write me any time at egoodman4@twlakes.net