--- In hydrocephalus@yahoogroups.com, "dfpoz" <dfpoz@...> wrote:
>
> I have congenital hydrocephalus, which has been arrested for the
> last 20+ yrs. I was shunted, the first time, at 3 mths of age.
> After the age of 3 I had no more surgeries until the age of 15.
> That was when I had my only revision.
>
> In 1983, six years after the revision, the tubing was removed, due
> to a staph infection. I still have the 'hardware', but haven't
had
> the tubing since 1983.
>
> Since 1993 I have been part of the Hydrocephalus Support Group,
> Inc., based in Seattle. We are a 501(c)3 organization that offers
> moral support to friends, family members, caregivers & those
living
> with the condition of hydrocephalus. We meet on the third
Saturday
> of each month, in the Casey Room at Swedish Hospital's Cherry Hill
> Campus (previously known as Providence Campus), from 1-3 pm.
>
> For the last several years I've been the p.r. director of the
group.
> I also organize our annual picnic. This year's picnic will be
held
> on June 22nd, from Noon on, at Shelter #3 at Lower Woodland Park
(N.
> 50th & Woodland Park Ave. N.). We're expecting members from
> throughout the Pacific Northwest.
>
> Thanks.
>
> dfpoz


Thank you for your reply,I live in the UK, so the groups you mention
are too far away for me to get to! I am glad you are doing well
though. Take Care,

Harriet (Sheffield, UK)
>