I have congenital hydrocephalus, which has been arrested for the
last 20+ yrs. I was shunted, the first time, at 3 mths of age.
After the age of 3 I had no more surgeries until the age of 15.
That was when I had my only revision.

In 1983, six years after the revision, the tubing was removed, due
to a staph infection. I still have the 'hardware', but haven't had
the tubing since 1983.

Since 1993 I have been part of the Hydrocephalus Support Group,
Inc., based in Seattle. We are a 501(c)3 organization that offers
moral support to friends, family members, caregivers & those living
with the condition of hydrocephalus. We meet on the third Saturday
of each month, in the Casey Room at Swedish Hospital's Cherry Hill
Campus (previously known as Providence Campus), from 1-3 pm.

For the last several years I've been the p.r. director of the group.
I also organize our annual picnic. This year's picnic will be held
on June 22nd, from Noon on, at Shelter #3 at Lower Woodland Park (N.
50th & Woodland Park Ave. N.). We're expecting members from
throughout the Pacific Northwest.

Thanks.

dfpoz