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----- Original Message -----From: kymberley bullockSent: Monday, November 05, 2007 4:55 PMSubject: Re: [hydrocephalus] Re: Elana/revisions?my name is Kymberly my nephew was born with hdrocephalus he has a twin brother that is fine. I was trying to better understand what my nephew has he is 5 now he has had 7 surguries before the age of 2. He is my miracle twin nephew he is a fighter he goes to therapy for occupational speech and physical. He has just started school is doing great in it.
Looking back on it all, I realize there are at least two philosophies:
1) Those children who endure shunt complications and revisions are labeled as a "fighter"
2) Fight schmight, there was little choice on the child's part but to endure what happened.
I guess the second one isn't as popular but it's the one I tend to believe in. I don't recall "fighting" for anything, just putting up with the pain. I wasn't going anywhere in the meantime.
That doesn't make it "easy" but to some of us, being a "fighter" means having to put forth a conscious effort in it. Then again maybe I underestimate others. I have long since given up any "fight" if I had any to begin with and it's possible others are more capable than that. Anyhow I hope your nephew does well in school. Both of them, really, but the one may need more help in the long run. I hope he gets it. I tend to be a little bitter at times, and I apologize, because I was often just written off as "lazy" when I was having trouble. As such, I struggled to finish grade 12/high school with all the applicable credit requirements and now when I look back I ask myself "why?" and don't see it as much of an accomplishment. So I hope he has a better time than I did, a different place, a different time, and has a brighter future then I could have ever dreamed of.
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